Anybody just stop taking their plaquenil? If so, how did you feel? I’ve been on it 6 or 7 months now. At month 5, I developed horrible hives. Yesterday was the worst they have been. I can’t deal with the itching.

My other problem is that my Rheumy quit the group and it’s taken them 3 months to shuffle me around and get me in. My next appointment isn’t until February.

32 Answers

matias.writhing
Answered 10 months ago    reply

Every time I have stopped taking it regularly, I have fallen really ill and had a bad flare up. I wish you the best!


jefferies79
Answered 10 months ago    reply

I dropped it


s78
Answered 10 months ago    reply

My doctor had me “wean” off to prevent a flare up.


keeling_theola
Answered 10 months ago    reply

just remember you shouldn't go in the sun for to long it can effect you


s_93
Answered 10 months ago    reply

I quit taking it after 3 months of feeling like crap and I was still having autoimmune flares


offended_kerri
Answered 10 months ago    reply

I developed hives as well I stopped it a couple of times but still have the hives. Started taking brand name as some people complain of hives from generic. I now take xolair shots for the hives. For me the hives are part of my disease. I have RA, sojgrens, and limited scleroderma. Good luck! It took a year to get improvement but it feel much better now.


bensonmerissa83
Answered 10 months ago    reply

Just did again. Now allergic to the brand name. Will go on cellcept next.


bensonmerissa83
Answered 10 months ago    reply

doretha cant the nurse get ahold of the new doc with questions? Give it a whirl on Tuesday.

eicher
Answered 10 months ago    reply

I haven’t even tried that. Might have to. Sjorgen’s is my least problematic issue. I have Pulmonary Arterial Hypertension.


c.sanders
Answered 10 months ago    reply

I had to stop taking it because I lived in my bathroom


mariam.somber
Answered 10 months ago    reply

I took plaquenil for years, and felt great. Then I developed a horrible rash. It took several months and a couple of skin biopsies before it was determined that I was allergic to the plaquenil. I was taken off the plaquenil and have tried several medications and nothing works as well. I was on plaquenil for several years. I wish I could still take it. Good luck.


deliriousdisappointed
Answered 10 months ago    reply

Supposed to taper down. When I stop I feel ok initially but then one day I wake up and feel like Ive been run over by a bus. Super soar, super tight joints, whole body hurts. Its aweful.

eicher
Answered 10 months ago    reply

I didn’t have any pain prior to starting plaquenil. She initially didn’t put me on anything. Only added plaquenil when the Lupus was positive (again).


cannon
Answered 10 months ago    reply

I dropped it and I actually didn't notice any difference up until now I've been good, hoping it stays that way because I don't want to take any meds

roxanne.rinaldi
Answered 10 months ago    reply

same here. did not make a difference at all when i stopped. and i just stopped.


g_73
Answered 10 months ago    reply

I stopped after 11 months, I developed psoriasis. I feel better now than on the meds


Raul_Newberry49
Answered 10 months ago    reply

Oh god please don’t tell me this! I have Sjögren’s and Lupus and I’m responding so well at the 6 month mark. I don’t know what I’ll do if I can no longer take it. I’ve literally gotten my life back.


Raul_Newberry49
Answered 10 months ago    reply

For me the Plaquenil has eliminated my joint/muscle pain, generalized swelling, given me my short term memory back, reduced fatigue and brain fog, and vastly improved my neuropathy and Reynauds. 3 months ago I nearly fell in the shower because if numbness. Today the tingling and numbess has been reduced by at least 80%. How common are allergic reactions??


m.tamera99
Answered 10 months ago    reply

I stopped it after around 6 months as I had been started on Salagen for the dry mouth and think the 2 just didnt agree together for me. I made the decision with my docotor to give up the plaquenil until New year as the Salagen was really helping me with the dry mouth. Next appointment with my Doctor we will probably discuss it but I want to go on the tablets to give up cigarettes - decisions decisions decisions


minnie.o
Answered 10 months ago    reply

If you break out in a rash or hives and are the generic, then try switching to the name brand. Also, make sure you are on the proper weight based dose (6.5 mg per kg of body weight). I am very thin and 2 pills a day was too much for my weight, and I had tinnitus and rashes. These negative symptoms resolved after the above changes were made.

eicher
Answered 10 months ago    reply

The pills actually say “plaquenil” but the bottle has the generic name on them. So I don’t know if it’s generic or brand name.

minnie.o
Answered 10 months ago    reply

If your pills are white and an hour glass shape with the words PLAQUENIL on them, then it sounds like those are the name brand. Those are what mine look like. On the outside of my bottle it says PLAQUENIL, and then in small print under that it says Hydroxychloroquine Sulfate Tablets. I get mine through a Canadian Pharmacy since it is a lot cheaper than buying in the U.S. The name brand Plaquenil pills look are from the same manufacturer and look exactly like those I had been purchasing in the U.S. If there is confusion as to whether yours are generic or name brand, you can call your pharmacist and ask what exactly you were prescribed.

eicher
Answered 10 months ago    reply

Pharmacy tells me they are generic. I’m going to have to clarify with them - again.

minnie.o
Answered 10 months ago    reply

Yes. I would call and double check that with them. My husband is a physician. He said that the pharmacies will usually fill a prescription with a generic unless the script states, "Name Brand Only". Are your pills little white ones that hourglass shaped and have the word "PLAQUENIL" on them? This is how my name brand ones look.


amazed_laborer
Answered 10 months ago    reply

I just stopped it and didn't experience any effects. Then again it didn't seem to work for me....


spindler66
Answered 10 months ago    reply

I got a rash immediately.. I don't take anything except supplements


Adela.89
Answered 10 months ago    reply

I’ve been getting a rash and hives because it’s so cold here right now. I’ve been on plaquenil since July


pipkin
Answered 10 months ago    reply

If you had a med reaction they should see within a reasonable amount of time. February isn’t reasonable. Maybe you can find out if your Rheumy is still in town and switch over to that practice

eicher
Answered 10 months ago    reply

I got a “it’s with mixed emotions” letter. If she was staying local, I think I’d have had the option to stay with her. I don’t know if it is a reaction to the meds. That’s part of my problem.


h_ricki
Answered 10 months ago    reply

I stopped taking it 2 weeks ago. Was on it 5 months. Gave me migraines. I no longer have migraines!


wardell
Answered 10 months ago    reply

Felt worse on their cocktail of medications which included plaquenil I literally felt as I was knocking on deaths door my body couldn’t take it


tomoko_lozano
Answered 10 months ago    reply

If I miss mine for a day or so all of my joints hurt, then my muscles will hurt


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