Sjogren's Syndrome

Can you all tell me why so many people with autoimmune disease are Vitamin D deficient? I just got some labs back and I am too.

32 Answers

Answered Nov 9, 2017    reply

Same. Also vitamin B12 deficient.


Answered Nov 9, 2017    reply

Same also potassium.

Answered Nov 9, 2017    reply

Potassium for me also, but mine is because I take diuretics. Most people that take diuretics lose potassium.


Answered Nov 9, 2017    reply

Wish I knew, cant get an answer


Answered Nov 9, 2017    reply

It is very common for those with AI disease. Note you more than likely have a magnesium deficiency too. Magnesium is required for the conversion of vitamin d into its active form, so if you are supplementing with Vitamin D and have side effects or your Vitamin D blood levels do not rise then you magnesium deficient! Magnesium and Vitamin D should be taken together in order to avoid vitamin D side effects and to maximize absorption of both nutrients.

Answered Nov 9, 2017    reply

What are vit D side effects

Answered Nov 9, 2017    reply

Some of the problems experienced by those taking vitamin D alone are:
Insomnia
Jitteriness
Muscle Cramps
Anxiety
Heart Palpitations
Constipation
Headaches
Worsening Pain
Body Pain/Bone Pain


Answered Nov 9, 2017    reply

I have MTHFR genetic mutations that may be a factor in why my vitamin D is so low. People who have anaphylaxis are also prone to having low vitamin D.

Answered Nov 9, 2017    reply

MTHFR C677t heterozygous here

Answered Nov 9, 2017    reply

How does Mthfr work? I think I may have that. My chiropractor mentioned it.

Answered Nov 9, 2017    reply

I have 3 of those lovely MTHFR gen mutations. My rheumy prescribed Folonic Plus which stopped my hair from falling out, helps my nerve pain and all-over pain, too. Prevents mouth sores (due to DMARD). I have to pay out of pocket ~ $1/pill, but it’s so worth it.


Answered Nov 9, 2017    reply

This is good to know because i was going to get vitamin d because of the coming winter months and not wanting to have even more depression. So I need to get magnesium too then.


Answered Nov 9, 2017    reply

Always low


Answered Nov 9, 2017    reply

In my opinion and experience it’s because many with autoimmune have a compromised gut lining. Enabling us from absorbing nutrition and supplements.

Answered Nov 9, 2017    reply

You can heal that though. Which I have done. For as long as I can remember I was anemic, low D,Bs, folate, iron, etc. Now i absorb and doing great.


Answered Nov 9, 2017    reply

V b12 here


Answered Nov 9, 2017    reply

I think mine is from avoiding being out in the sun (or wearing a ton of sunscreen) due to a skin cancer scare and also I don't drink milk or really anything fortified with vitamin d.

Answered Nov 9, 2017    reply

Same here. Switched to vitamin D3 5000 IU every day and that fixed that. Up to 10K IU if I'm sick. SPF 50, hats, long sleeves... Not getting much out of sun exposure and don't drink milk.


Answered Nov 9, 2017    reply

Vit D low for me


Answered Nov 9, 2017    reply

What is your vit D level?

Answered Nov 9, 2017    reply

Mine is 17

Answered Nov 9, 2017    reply

mao I was 22 back in June when I got diagnosed. I’ve been on 50,000iu wkly since then and my levels have increased to 52, they still want me on the high dose for a little while longer especially thru the winter mths... my rheumy likes vit D levels between 50-100

Answered Nov 9, 2017    reply

I just went to the dr- mine is at 18. They are putting me on the 50,000iu too

Answered Nov 9, 2017    reply

Mine put me in 5000iu a day....wonder why I’m not on more?

Answered Nov 9, 2017    reply

the 50,000 is a weekly pill Im to take for 12 weeks- then they are dropping it down to a daily dose. I don't know what it will be yet

Answered Nov 9, 2017    reply

Jacquelyne they may base it on your vit D level

Answered Nov 9, 2017    reply

My level was 12. I'm on D3, 8,000 and 10,000 alternating days.


Answered Nov 9, 2017    reply

Me too.


Answered Nov 9, 2017    reply

Can’t be out in the sun. Medicines and skin issues cause mine.


Answered Nov 9, 2017    reply

My vitamin D is within the normal range, but definitely in the lower end. My specialist suggested I take a supplement. That's what I'm doing now; I'm getting some bloodwork done in December and I will keep you posted!


Answered Nov 9, 2017    reply

Wow....i have been low on potassium, magnesium, vit d and b for years..i take the constantly


Answered Nov 9, 2017    reply

Many people have low Vit D because we don’t spend much time in the sun or wear sunscreen. It only takes 15 minutes to get enough sun to make sufficient vitamin D, but I stay out of the sun, too. I think my doctors see low Vitamin D is one piece of the autoimmune puzzle. It’s used by the body so many ways. I took the 50,000 IU pill 1/week for months and my Vit D levels are finally normal. I still take 2000 - 4000 IU a day.


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