Diagnosing isn't the hard part...the fact that there is no effective trearment is the bad part..
One step closer in awareness and diagnosis! I feel diagnosis happens way too late. Praying this leads to other discoveries. I will take the test.
There has been a blood test for awhile, I think like my kids to take it to know if they could develope it since my husband has it, but I agree if there is no effective treatment, what is the purpose. Our kids know there is the possibility
I’m working at educating my kids on prevention rather than focus on the possibilities they could develop it.
I don’t want to know.
I'd like to know. It would be a confirmation (or not) of my doctor's diagnosis, and if it were negative, a reason to look for still more causes.