Do you guys with T1 ever notice periods of insulin resistance? Or at least sustained high bs's over a period of days? I tried researching insulin resistance in T1 online and got either a bunch of nonsense (or info.

On "double diabetes" which I know I don't have T2- I'm thinking of more of a temporary high)There is def. A time where hormones interfere with my normal insulin routine each month. I've just been high for about 2 days and even after the gym I go temporarily " low" (190's) but shoot back up again. I'm thinking stress? Anybody notice anything that causes sustained highs besides hormones, stress, or illness? I'm scrathing my head and am SO discouraged lately.

37 Answers

38
Answered 9 months ago    reply

Have you tried replacing the insulin? I pump and sometimes when this happens I just change my site, tubing cartridge and a whole new vial of insulin (or some combination therof at least). If its been hot for a while maybe the insulin is breaking down?

reena.r
Answered 9 months ago    reply

I did change out my tubing (Etc.) this morning. It always takes me a day of sustained highs to think "oh maybe I should change out my site!" I'm still running high though.

74a
Answered 9 months ago    reply

I was told that in a pump, insulin is only good for 72 hrs. I noticed a trend of highs after the third day. It was so crazy how true that was! Medtronic rep is who told me!


hibbets
Answered 9 months ago    reply

This always happens to me the week before I’m on my period. My basal need increases by about 10%. On my pump I have a setting that I use for that week the I go back to my normal one

24b
Answered 9 months ago    reply

I have the same problem, but haven’t been observant enough to change my basal rate.

hibbets
Answered 9 months ago    reply

saldana I worked with my endo. Are you on a cgm? I just uploaded my numbers to the dr office then they helped me set.

24b
Answered 9 months ago    reply

Hibbets yes, I have a cgm. I’ll have to do that on my next visit- thanks for the tip!

reena.r
Answered 9 months ago    reply

I am HOPING this is the case for me! I thought it wasn't that time, but I could be wrong. Normally I keep a log using an app to track my period, but I think I missed recording last months and we've been so busy that I don't know where I'm at! I really really hope it is though. I can't think of what else several days in the 200-300's would be. That seems to high to be stress to me.

24b
Answered 9 months ago    reply

Reena I typically find changing my infusion set helps a lot, but I tend to do that as a very last resort.


prinn34
Answered 9 months ago    reply

It can be really frustrating. I also change the insulin but I think what you eat can make a difference.


89v
Answered 9 months ago    reply

For me it's always a not optimal site.


kleinman
Answered 9 months ago    reply

Different basal pattern required for pre mentural days. Do you change your reservoir every 3 days? The insulin degrades after this in the plastic rising bs.

reena.r
Answered 9 months ago    reply

I've been really bad at being regular with the 3 days. I normally don't use very much insulin so I go like 4-5 days. I didn't realize that the insulin degrades in the plastic! Good to know! Thank you.

kleinman
Answered 9 months ago    reply

I didn't realise for years I guess i must have been told but its farily overwelmjng when switching from mdi to pump. It was only when I was really trying to tighten up control (to get ready to conceive) that working with my consultant I realised the gentle curve up after 4 days. I now set an alarm and only fill enough insulin for 3/4 days.

reena.r
Answered 9 months ago    reply

kleinman good to know. I go a little fill happy with the resivoir trying to get the bubbles out! I will try this!


skagerberg
Answered 9 months ago    reply

Me but I also have pcos so that's why

hanhardt
Answered 9 months ago    reply

I also have pcos and find myself going through the same thing. I never really put 2 and 2 together that my pcos was causing my random times of super insulin resistance. Duh on me

z9
Answered 9 months ago    reply

Me too and this happens to me also. Random days when my BGs are high with no reason and then come back to normal. I think we have cycles and changing hormones so that’s why it seems to be more insulin resistant on that days. What I do is to monitor more constantly and correct the hypers also sometimes put more basal dose(2 units).


ahlb
Answered 9 months ago    reply

This may sound crazy, but here it goes. In February I had a softball-sized tumor removed from my ovary. Shortly thereafter, I’d have the crazy random highs and regardless of how much insulin I took, I couldn’t get them down so I’d just let them pass after a few days. I mentioned it to my endo, and he had me start tracking when I had them and start comparing to my menstrual cycle. Usually about a week to the day before I start I’d have the issue, so he created an alternate “pattern” for me to use during those times. When it happens, I just switch over. My sugars were still running a bit high and he noticed my thyroid was “off”, so he put me on a minuscule dose of Levothyroxine and I’m serious, it’s done the trick. Hormones are WACK! Lol

reena.r
Answered 9 months ago    reply

WOW! I do notice a huge swing in my bg over the time of my period. I'm high for a few days- feels like I'm insulin resistant and then BAM! I start my period and I can't keep up with the lows. That is good information about the patterns. I do have a pump so I can set patterns. I am always watching for thyroid. I have positive antibodies but so far all my lab results have been negative for thyroid disease. My #'s are always good. Is repeated highs a sign for thyroid being off???

ahlb
Answered 9 months ago    reply

Reena I don’t know that it’s necessarily a “sign”, but he told me he wanted to try it and see if it could help. He told me that if anyone asked me about it (doctor wise), to just explain that we were trying to get hormones in check.


schalow81
Answered 9 months ago    reply

Mine goes for weeks. The whole month of August my average BG 130. First of September started creeping up and has remained high for about 3 weeks. I really can't explain.

reena.r
Answered 9 months ago    reply

UG! It's SO maddening. I always think if I do "XYZ" everything will be perfect, and I can't figure out why I do all the right things and my #'s are still off!!! Diabetes, I guess!


why
Answered 9 months ago    reply

Is it your period? I go high before my period


coverton
Answered 9 months ago    reply

Yes, usually the week before my period. I also have switched from going low after workouts to going high. It's frustrating but I just adjust my insulin. Sometimes I've found if I track my water intake Im not drinking enough. When I get back on it they numbers go back down too.


athy
Answered 9 months ago    reply

I get this way for days a week or 2 before my period, my insulin rates go up by 50%!! Then a day or two after i start my period it goes back to normal


trausch91
Answered 9 months ago    reply

I ve had an infection one time which was pretty bad. Once it was better i still had crazy sugarlevels for two more weeks. I needed insulin 3 to 4 times as much as usually.


seigler36
Answered 9 months ago    reply

Same boat. Everything was great, almost perfect for two weeks. I had reduced calorie intake, was working out enough at the right time, and was running low enough that I was planning to change my basals (again, 4th time this year). Stress, marching band season, church meetings, change in schedules... Three weeks later, and I have stabilized, but my weight loss is gone and my normal numbers are running higher. My workouts have intensified, but because I have less control over my schedule (kids in marching band, I'm band booster president), it's harder for me to find the right balances. It seems like I get on this roller coaster several times a year, and by the time I adjust things to make it work, it's time to adjust again.


seigler36
Answered 9 months ago    reply

I don't have to worry about the periods - has to add an extra layer of complexity.


hentschel83
Answered 9 months ago    reply

Yes. I have to use U500 insulin because of it.


strosnider
Answered 9 months ago    reply

Our bodies can change and become less sensitive to insulin over time. I speak from experience. I've been helped by certain supplements. Diaxanol by Ortho Molecular, Glucofactors by Weed Botanicals, and some people are partial to berberine, though I didn't find it as helpful, but definitely worth another try.


hess
Answered 9 months ago    reply

4-5 days a month about 1 week before my period starts I use almost twice the amount of insulin then go right back down to my usual dose.

miskelly
Answered 9 months ago    reply

Yep I'm pretty much the same!

hess
Answered 9 months ago    reply

I change my carb to insulin ratio from 1/10 to 1/6 and basal goes up as well. Depends on what kind of pump you have. If its a 670G you can just lower the active insulin time


13
Answered 9 months ago    reply

I need to increase basal by 50-60% from ovulation to period then right back down for 2-3 days...breakfast and lunch bolus goes up too...so I have to go very low carb or just skip meals. It is very frustrating and really effects my mood and ability to do work. Sometimes a few days before ov I am more hypo prone... Use the Clue app, to track hormone cycle. It's helped me to see my insulin needs definitely change due to progesterone fluctuations. Can even set wee reminders to warn of impending hormone changes for awareness. Trying to keep fit on top of thw changes has been incredibly challenging!!!! How do you all do it? Please PM me. I'm going on the pump in a few months (once I finish travelling).


kade
Answered 9 months ago    reply

During my Period and when im ovulating my Basal requirements fluctuate quite a bit. Or if im fighting a cold. Like right now. This whole week ive been feeling not super sick but like im on the verge and both my daytime lantus and night time lantus injections have increased considerably. From 12 and 12 to 14 and 20!

13
Answered 9 months ago    reply

Mine go from nightime 8 and morning 6 to nightime 10/12 and morning 20/22 :( However, during my travel so far I've not had to adjust my basal much and I'm one full month in. For 3 days my morning basal was up to 12. (Is the heat and not having the morning stress of getting ready to work helping?)


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