Hey pals. I’m in Indiana and trying to get a diagnosis. Any idea specifically where I can go?

14 Answers

Gilliard
Answered 7 months ago

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reassuring_auditor87
Answered 7 months ago    reply

I went to an orthopedic specialist and they gave me a rheumatologist office and they said they don’t treat EDS


TariL
Answered 7 months ago    reply

I was diagnosed by an orthopedic surgeon in Cincinnati. That’s for hypermobile type

reassuring_auditor87
Answered 7 months ago    reply

I think I have hypermobile type. The orthopedic specialist I saw said he couldn’t diagnose me and I was like? Okay

TariL
Answered 7 months ago    reply

Grayce yeah this was my 18th ortho surgeon I’ve seen. Talked to his fellow and was telling him I had been recently dx w pots and read about eds and I have frequent dislocations. He blew me off and said no way I would have been dx as a child. So I said ok. Surgeon comes in. Bends my joints. Does some stuff with my hands. “Wow you def have eds really severely let’s measure your angles of hyperextensuon” then I glared at the fellow like. HAHAHA

reassuring_auditor87
Answered 7 months ago    reply

My joints hyperextend so badly and my ankles are fucked.


nicola
Answered 7 months ago    reply

Heidi Collins! She’s a great Dr, she takes time with each of her patients! She’s also a zebra!

reassuring_auditor87
Answered 7 months ago    reply

Omg

reassuring_auditor87
Answered 7 months ago    reply

Looking her up now

nicola
Answered 7 months ago    reply

Grayce she just moved. let me see if I can find the paper!

nicola
Answered 7 months ago

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reassuring_auditor87
Answered 7 months ago    reply

I’m in Indianapolis but I’ll drive if she’s worth it

nicola
Answered 7 months ago    reply

Yes! I’m 33 years old and have shown symptoms as a baby! Was just dx in October! I have a friend that go to her from Michigan! She’s worth it!

reassuring_auditor87
Answered 7 months ago    reply

I used to be the kid who contorted their body as a party trick


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