Hi everyone! I just turned 40 and just received my diagnosis. It was my eye doctor who first suspected Sjogren's. We are new to the area and didn't have a GP so she referred me to a family practice osteopath in our local hospital network. I met with him for the first time last Tuesday.

We discussed my dry eyes, dry mouth, intermittently swollen stabby toe, other joint pain, etc. He ordered blood tests on the spot. I had my blood drawn on Thursday, had a diagnosis by Friday. My symptoms are not severe so he isn't referring me to a rheumatologist at this point which is fine by me! I'm currently managing my symptoms with a clean, paleo-style diet and lots of exercise. My questions are these: 1) How many of you have progressive symptoms? How many of you experience flares but your symptoms aren't worsening? 2) How often do you experience flares? How long do they last? How do you differentiate your sjogren's syndrome symptoms from other ailments? Are you symptoms constant? 3) How many of you have tried an autoimmune protocol diet or something similar? Did it help? 4) How many of you manage your disease with alternative methods like diet, exercise, chiropractic care, etc? Thanks, guys!

10 Answers

barajas.22
Answered 1 year ago    reply

I am also new to this. Diagnosed a month ago & started trying the AIP diet. Helped tremendously. Stopped it when I went out of town & symptoms returned. Definitely staying on it this time & making it a lifestyle change. I have a mild -moderate stage of the Sjogrens. Had a lip biopsy to confirm. Symptoms I had were dry eyes & extreme dry mouth & some joint pain.


e_alix92
Answered 1 year ago    reply

Welcome!
I've been dealing with symptoms for 8 years but am newly diagnosed.
I will say it over and over I am such an advocate for an anti inflammatory diet!
I get out and move as much as I can.

receptivejunita
Answered 1 year ago    reply

I figure if nothing else, less weight on the joints means less pain!

barajas.22
Answered 1 year ago    reply

My thoughts too. The AIP seemed to help with joint pain. I hardly had any when I was watching what I ate.


l_roseman
Answered 1 year ago    reply

Hi the dryness in my breathing pipe is worse than before and always there (cough, hoarse , and I have (through six years) gotten more and more strange symptoms, mostly nerve related and most come in flares, except, tingling in limbs is always constant, and my coordination in my hands are a bit off all the time. Just have to keep positive mind


salter
Answered 1 year ago    reply

I was DX 9 years ago. My symptoms has gotten worse over the last 2 years. Leaky bladder, kidney issues, intestinal issues. I have changed my diet 3 times. For me not one is better than the other. But due realize everyone is different. I also struggle with other autoimmune disease's. If what you are doing is working for you then do it. Wish you all the best. Continue to ask questions.

receptivejunita
Answered 1 year ago    reply

salter, looks like we're neighbors! We live in Granger, just north of South Bend.


bahena93
Answered 1 year ago    reply

My main issue is the extremely dry eyes - have gotten worse and worse over the past few years.

marcella_rough
Answered 1 year ago    reply

It's worth asking for Tear Duct plugs, if they work then have your ducts cauterised, it really helps


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