How many people here have Bicuspid Aortic Valve? Very curious a my 7 yr old daughter has it. She also shows signs of Sjogrens with dry eyes, very dry skin, lung issues, etc. I have sjogrens too. I think there may be a connection.

7 Answers

rashid81
Answered 11 months ago    reply

My daughter has it as well. She is 4. I do not, nor does anyone in my family. Her cardiologist told me that it's the most common heart variation, and that it's also hereditary. It is also associated with Turner's syndrome, which is a chromosomal. I do not believe there is any link between a BV and autoimmune disease. It's a pretty common heart defect.

angelenaw
Answered 11 months ago    reply

Luckily my daughter doesn't have turners syndrome. And no one in my family has Bicuspid Aortic Valve. But new research does show that there is a connection with it and connective tissue disorder- a certain one has not been found yet. My d pedi cardiologist checks not only her valve but also the whole length of the aorta from her abdomen- up her neck. Her mitral valve has the right amount of leaflets but does have stenosis and regurgitation too. I know 2 adults with Bicuspid Aortic and they have had surgeries due to aneurysms they developed in their aorta. My daughter's will be due to be replaced in about 3 years now.


c.remona
Answered 11 months ago    reply

I️ have it as well as sjogrens

angelenaw
Answered 11 months ago

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a_chance90
Answered 11 months ago    reply

I have a murmur in my tricuspid valve since childhood.


angelenaw
Answered 11 months ago    reply

That may be your Aortic Valve. The aortic valve is supposed to be tricuspid. But in Aortic it is only Bicuspid which does cause a murmur.


a_chance90
Answered 11 months ago    reply

The Cardiologist called it Tricuspid! So far it’s never been an issue.


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