Sjogren's Syndrome

I need some help my dr wont do anything about my v b12 levels always being low he keeps tellen me to increase my v b12 and i do and it always low i have sjorgens and lupus what could i do?

51 Answers

Answered Nov 9, 2017    reply

can you double the B12 vitamins?

Answered Nov 9, 2017    reply

With v b12 deficiency jess the pills dont work

Answered Nov 9, 2017    reply

ik i forgot

Answered Nov 9, 2017    reply

my brain doesnt work

Answered Nov 9, 2017    reply

Dawkins this is how stupied zanesville drs are

Answered Nov 9, 2017    reply

ik thats why i go to osu

Answered Nov 9, 2017    reply

Isnt there a liquid under the tongue you can get at vitamin store Telles

Answered Nov 9, 2017    reply

Yeah trying to find someone who specializes in it

Answered Nov 9, 2017    reply

Dawkins idn im asking

Answered Nov 9, 2017    reply

call GNC

Answered Nov 9, 2017    reply

I know there are tiny sublingual b-12 tabs that you put under your tounge.


Answered Nov 9, 2017    reply

My primary gives me B12 shots every other week. If your Rheumatologist won’t prescribe anything, ask your primary. Ask your doctor WHY he won’t prescribe something. I have to have the shots as the parietal lining of my stomach won’t absorb vitamin 12. Hope you find a solution.

Answered Nov 9, 2017    reply

My rheumatologist tells me to see my family dr for it so i tell my family dr and he just told me to increase my pills my facw is numb hands and feet i just wanna cry

Answered Nov 9, 2017    reply

Is doubling the pills helping? He should be doing blood work to make sure. If it’s not helping, ask for injections. Find another primary. This is a fix that should be simple.


Answered Nov 9, 2017    reply

My dr said to take b12 that dissolve. But you need to check because I was told there are different types, some good and some not so good. Or try the B12 shots I did those for a short time.

Answered Nov 9, 2017    reply

My dr wont give me the shots and my insurence wont cover pills im on pills i guve up

Answered Nov 9, 2017    reply

Give up

Answered Nov 9, 2017    reply

The B12 tablets you purchase at the Vitamin store


Answered Nov 9, 2017    reply

I use the sublingual (under tongue) liquid form of b12.

Answered Nov 9, 2017    reply

Where u get it at

Answered Nov 9, 2017    reply

My face is so numb and hands and feet

Answered Nov 9, 2017    reply

B12 is water soluble. How can your doctor think taking more will help. I can not process D. Please ask for the test to see if you are not processing B12.

Answered Nov 9, 2017    reply

Dorotha im confused he told me i have a dificiency

Answered Nov 9, 2017    reply

Telles Walmart

Answered Nov 9, 2017    reply

Thank u merrilee is their any side effects? My hands feet and face is numb

Answered Nov 9, 2017    reply

Telles I don’t think so. I use at night.

Answered Nov 9, 2017    reply

Just watch for the other ingredients. They sometimes have artificial sweeteners... In case you are allergic to one...

Answered Nov 9, 2017    reply

Also, see the source of B-12... This one starts with a C... Look that up and compare with the one that starts with a M. I have read a few things, but I rather people make their own conclusions.

Answered Nov 9, 2017    reply

Thanks everyone


Answered Nov 9, 2017    reply

Have you been tested for the mthfr mutation? That can cause levels to be off since your body isn't using b vitamins

Answered Nov 9, 2017    reply

Idn what that is

Answered Nov 9, 2017    reply

Its a genetic mutation that causes our bodies to not be able to methylate, or process b vitamins. Its fairly common with autoimmune diseases for some reason. I need to take methylfolate and methyl b12 so that my body can use it. Now my numbers are back in range. Usually a blood test is all that's needed

Answered Nov 9, 2017    reply

Yes, was just about to suggest. May need to take heme iron and vitamin c, too.


Answered Nov 9, 2017    reply

I’d check in to another primary. B12 shots are common. He shouldn’t have a problem giving them. I go in every other week. Don’t even see the doctor. Just get the shot.

Answered Nov 9, 2017    reply

Idn why he use to give me monthy and stopped

Answered Nov 9, 2017    reply

not sure what “idn” is. Ask him. Call his office and ask. Sometimes we have to advocate for ourselves. Call your insurance and see if they cover the injections. Then call your doctor’s office and tell them you want to start on the B12 shots again. He also needs to do blood work regularly to make sure the tablets / shots are working. If he’s not willing to do things as easy as this, I’d definitely find a new primary.

Answered Nov 9, 2017    reply

doretha my insurence wont cover the pills idn why cause im on medical card but who knows ok


Answered Nov 9, 2017    reply

Take vitamin b-12 sublingual.


Answered Nov 9, 2017    reply

What type of B-12 supplements are you taking? You could have an absorption issue or MTHFR mutation and in if this is the case then you need to be taking Methylcobalamin B-12. Note most B-12 shots and supplements are Cyanocobalamin which is a synthetic version of B-12 and not easily absorbed.

Answered Nov 9, 2017    reply

That’s why I have to take the injections. The parietal lining in my stomach won’t absorb vitamin B12. I think her doctor needs educated

Answered Nov 9, 2017    reply

doretha Well my body doesn't absorb the shots either as it is a synthetic form of b-12. I had to switch to methyl-B12. Once I did this my numbers came up.

Answered Nov 9, 2017    reply

I take these and they seem to do the trick.

Answered Nov 9, 2017    reply

Oh wow. I’m good with the B12 shots. Either way, this is something a primary should know.


Answered Nov 9, 2017    reply

Your Doctor should take bloods and also ask him to include coeliac, diabetis vitamin D. I had low B12 and knew it as my feet get very cold and I would be constantly tired with no energy. I got a injection once a week for the last 7 weeks and levels are back up. Back for another one in a month. Could you get your bloods done at the local hospital and see what they say.


Answered Nov 9, 2017    reply

I give myself a B12 shot once a week, ask your Dr for a script and learn how to give yourself a shot


Answered Nov 9, 2017    reply

I initially had to go to one of those medical weight loss spa places and met with a doctor there. I told her of my family history of both my mother and sister having pernicious anemia (stomach lining will not absorb b12) and how I was having symptoms. The doctor started me on biweekly injections of b12 and b6. The b6 stung to high heaven and I got severe intestinal upset and diarrhea after each shot. So I told the doctor about it and she said it was the b6 causing that and switched me to b12 only injection. That was much better and did not sting. I do single or double b12 injections once a month for a cost of $20. When I got my new primary doctor in March of this year I just told her I was doing b12 injections due to pernicious anemia and she began writing the script for it. I pick it up at pharmacy and bring it to her office for injection. I do not get charged for the injection at her office.

There's a special test for b12 deficiency called Schillings I think. Most doctors don't order it and just do iron test. That's not the test for this type of anemia.

Ask about it. Primary care physicians should be able to do this for uou.


Answered Nov 9, 2017    reply

My rheumatologist gave a RX for injections....I give them to myself weekly.


Answered Nov 9, 2017    reply

My chiropractor offers B12 shots which helps.


Answered Nov 9, 2017    reply

use methylcobalamin instead of cyanocobalimin it is much more effective

Answered Nov 9, 2017    reply

Idn what that is


Answered Nov 9, 2017    reply

I get my B12 shots at my hematologist office


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