Are you American? It’s probably about insurance coverage.
No UK. I did wonder about that.
My pcp wanted an MRI before I had my first CT. She said it would give more answers. I had to wait about 10 days for insurance to approve. Sure enough she was right and the found chiari malformation.
How and where did you get an MRI that would fund chiari? I have had a few MRI'S, but I thought you needed it done while erect, not supine. I never questioned it in the past since I didn't realize that I had ehlers-danlos.
I had mine done at the local hospital. My chiari was detected on a supine mri.
It's usually a good idea to do at least one to rule out more serious causes.
I had a few when I was a kid, mostly because I have them at a really young age (most 3 year olds don't have severe chronic migraines).
I had one as an adult when I started having new symptoms.
Now they want to do periodic ones on me because I have lesions on my brain, symptoms that could possibly be MS, and a family history of MS.
May I ask what your possible MS symptoms are? I was referred to neurology to rule it out and that’s how I was diagnosed with chronic migraine variant. I’ve always hoped he really knows what he’s talking about and didn’t miss anything, because I had 2 small (less than 2mm each) hyperintensities show up on my MRI.
I have prolonged episodes of numbness, muscle weakness, dizziness, discoordination, memory lapses, difficulty with words.
I get chronic complex migraines too, which can explain all my symptoms, but the MS-like symptoms come in waves of a few months at a time.
The dizziness and discoordination lasted about 6-9 months. This past Fall my hand and face were numb for about 3 months.
I spent about 9 months unable to say a word that was in my vocabulary previously. I knew it, and could think it, but I couldn't say it no matter how hard I tried.
There might be more I'm forgetting; these are just examples.
Kristal oh wow, I’m sorry you’re going through all of that. I hope they figure out what it is for sure so they can also help you!
My first mri was two years ago and they did it before they started Boto
I have a family history of brain aneurysms. they did an MRI. sadly I have one. so anytime I need an MRI. I can get one based on that.
Are they just letting the aneurysm stay? They found one with my mri and did surgery
Yes. they said mine is small. they said many people have them and never know about them their whole life.
regenia that is interesting. I had a few of them but I guess they were bigger then normal because they didn’t just let it go. I can’t imagine just letting it go it would scare me. I’m glad that yours is small.
I was shocked too since I have uncles that have passed away because of it. but I trust my doctors.
It’s something scary to deal with but trusting your dr is the way to go.
Yes. I'm glad they found and took care of yours. that's awesome they found them.
regenia I’m glad they can watch yours. Now it can be monitored
I had an MRI as I was losing my hearing (I'm 28 with no family history of hearing loss or deafness this young), so they wanted to rule out some stuff, and that's when they discovered my migraines were so bad (duh) that I was actually having lesions develop on my brain & what not soooo now they've been keeping up with that to try & figure some stuff out (they wanted to rule out MS too, which they have. thankfully. for now)
I'm in the UK and have never even discussed scans with any doctor. Actually, never seen a specialist for my migraines.
I think alot is insurance companies etc. All I have been offered for migraine is medication.
Well, we've got the NHS in the UK, so I guess saving money is a part of that.
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Yes, you definitely need to push to be referred for investigation. I hope you are successful
I am in the Uk and I had an CT and MRI right away! So strange
I haven’t had an MRI of my head, only my neck. I have had a CT scan of my head and neck.
It is seldom necessary. Doctors in the U.S. order MRIs as a CYA thing (meaning, of course, Cover Your Rear). However - in rare cases it will find the source of other symptoms, as in the case of Chiari Malformation and other serious problems.
Exactly Della. if someone really wants an MRI in the U.S., you just have to say the "right" things. the CYA will kick in.
I was but I decided not to do it because of the co-pay, then the Dr. Told me at my 4th visit that he would not push for me to have it done because he performs some exams each times and he sees no change so that tells him that there is no neurological change or indication for concern that would tell him that I really need the MRI, so when I told him about the co-pay he said he felt comfortable with me not having it.
Of course, Alyssa! With history and heredity like that, MRI IS necessary! But in most cases it merely rules things out, and is overused.
It depends on your symptoms. I had it done before I was diagnosed with migraine and then another because the pain was so bad in my neck that I thought it was disc related.
It’s used as a test to rule out other neurological conditions.
I’ve had a few.
As someone said, it’s used a lot for CYA for the docs because we are lawsuit happy in the U.S.
Maybe because you’ve had MRIs for tinnitus? I’m guessing there’s no need to repeat them for migraines if nothing of concern is showing up on previous scans.
I had a cat scan in early stage way back in the ice age to rule out tumours. I had two done 4 or 5 years ago? I think due to my migraine causing amnesia. MRIs will only show one has a brain. Sigh unless you have damage from migraine which you don't want. If there is a worry mention it to your doc.
Man, I’m so done with scans.
I've never gotten one either.
Same, never had a scan
For insurance purposes to get procedures and rule stuff out. I had one
I'm in Canada and either get a CT scan or MRI every year
In Canada too and only had 1 cat scans in the 18yrs since I was diagnosed. That one was done 3 or so years after diagnosis.
I think mine was because of the related vertigo, tbh.
Same here. went to ER with vertigo and I think they do MRI to rule out other issues. traumatizing experience though
It sounds funny but my MRI was so calming. They only scanned my head and it held my head in place which was strangely comforting. Plus, the noise blocked out my thoughts
Mine were growing in intensity and frequency so she wanted to rule out a tumor.
It would be suggested by a neurologist.
They are doing one for me only because it is changing and affecting my sight where it didn't before. 1st one in 20 years
My doctor referred me on thurs for a scan waiting for the appointment I also suffer with fibro I’ve had migraines for nearly two years I’m in uk
I’ve never had one or been offered one, but my best friend has. She stopped having her periods and they didn’t see any eggs in her ultrasound, which led them to believe she might have a tumor on her pituitary. MRI confirmed. She was having migraines with aura, but it was the additional symptoms that led them to believe an MRI would be helpful.
I have a family history of aneurysms so the typically do an mri once a year
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My uncle died of a brain tumour and my sister has MS.
Lorita I have a brain tumour and my dad had ms
Blimey cari how are they treating you im having mine as vision been bad other symptoms aswell the doctor confirmed fibro a cple pf years ahosp the. The migraines started without a scan it’s impossible to know if it’s anything else so think this is why I’m having my scan
I had headaches for five years and hearing loss , before being diagnosed , it wasn,t until I got dizzy spells that I was investigated further and a precautionary scan done , which discovered tumour , my ns said could of been there since birth , I was 39 , when diagnosed in 2009 .
I was misdiagnosed with depression , chronic daily headache and then labrynthitis ( ear infection ) before tumour found , this wont be the case for everyone but should be ruled out , only a scan can do this
cari the flashing Vision started when I was pregnant also had eyes tested a few times
Pearly , agree a scan is the only way to know whats going on in your head .
I've had two debulk craniotomies , 2009 and 2010 , radiotherapy on remaining inoperable tumour , keeping it stable since 2011
cari Jesus bless you that’s good they are keeping it stable
My understanding is mri,s are done to rule out , causes of migraines? Especially if there are other symptoms alongside migraines , I personally think scans are a good idea at least once to rule out other possible causes .
Would you like to have a scan a scan Branden but never been offered one?
Are you having annual scans? For something else?
My half sister has a brain tumour but her migraines were not chronic like mine. ive not met her as she lives in the Phillipines she just mention she has migraines when she said about the brain tumour. other sister in Phillipines does too. I met her
I’ve never had one either, I’m in the U.K., been suffering for about 20 years
Ask your doctor why he/she never offered you an MRI. See what they say.
They never found anything with my migraine scans don't show pain.
I have had several of the brain. I seeing a new dr and he wanted to see an MRI of my neck and spine since the other dr never ordered that one even though I asked he repeatedly if I could
Have a problem in my neck since I wake up this way every damn day
Mine first ones were for my knees as I have a genetic disorder. I had one that was both for my head and back. After that one I had to get s full body scan that took 2 hours but luckily that doesn’t involve an enclosed space. They had to see if there was a tumor on my spine and pituitary.
It found white spots on the frontal lobe & they said it is common to migraines.
Had CT and MRI to rule out diagnosis and to have baseline scans to refer to if something happens (ie: stroke, bleed, etc). Recently had repeat MRI due to new symptoms, results compared to baseline and several diagnosis ruled out, but findings in neck explains new symptoms. Also, my DR looks at white matter changes, etc.
I’m interested in your neck findings. had mei neck scan and get results next Thursday .
I have c3-4 fixation, done about 5 years ago. Started with arm and hand numbness in December. Showed some facet narrowing and mild bulging at c4-5 but no cord impingment
I have trigeminal neuralgia and chronic migraines.
I’ve had MRIs I’m the past,albeit around 10 years ago at this point, and nothing has been visible. My doctors say that is very common.
Family history of early strokes and heart attacks was mine.
I think they gave me a scan because I kept coming in with my migraine
My first stop was the Ear Nose and throat doctor because I was dizzy. He did some tests and sent me for an MRI due to his findings (not sure why or what). This started my journey. There were lesions found in the MRI. With some of my other symptoms they suspected MS.
So they set me up for a repeat brain MRI in 6 months to determine whether the lesions changed or not. They also did an immediate cervical MRI to see if there were lesions in that. There were not. I had a spinal tap and I had no bands. Some other tests and then the last brain MRI showed no changes in lesions. So it was determined I do not have MS but I had MAV (migraine associated Vertigo).
That is why and how I had so many MRIs
I live in USA and got an MRI because of my chronic migraines. I've only seen the neurologist nurse practitioner. Basically I'm required to take every anti-depressant, seizure, and heart medicines before I can see a neurologist. I'm done taking preventative medicines. They don't work and don't like the negative side effects, so I'll never be able to see a neurologist. I suspect the neurologist would just insist I take preventative medicines that were not created specifically for migraines.
I had an mri and mra because my headaches were getting more frequent and more severe, felt like my head was pounding with my heartbeat! They found an aneurysm and I had it clipped through surgery. Still have migraines.
I had a bad whiplash injury which started all my long term migraines and more extreme migraines. I’ve had flexion and extension x rays, neck MRIs and a brain MRI. My neurologist thinks mine is from spine instability. Thankful that as a result of PT my everyday headaches are a thing of the past and I am on depakote as a prevention which helps reduce the intensity. I seem to get migraines a week before my period starts many times, but docs are not really sure why.
I think it depends on the doctor really, my neurologist wanted a CT and MRI both with dye but one of my hospital visits they did the CT with dye so he used that and got me an MRI. When he looked at both he said my brain was perfect lol doesn't feel perfect though.
I had a previous head surgery and some concussions. They want to cover their butt.