Yes, meds off and LID for two weeks til WBS
If you do the thyrogen injections you don’t have to go off your meds. Makes it so much easier
Yes I know my daughter also had it done that way
I did Thyrogen so I did not have to go off my meds. Did LID diet for 3 weeks prior to scan
So I will ask about Thyogen... I really prefer not going off meds
It really depends what your doc recommends.. My daughter first WBS was without the thyrogen shots. But the second WBS he did, I guess it depends on your doctor
Yes. You can do low iodine diet for 7 to 10 days. Being off meds for 10 days shouldn't affect you much physically. They do offer thyrogen , depending on endo and insurance.
No impacts to being tired, foggy brain or anything like that? Weight gain?
Not after 10 days typically. Of course everyone is different. I've done med withdrawal 3 times.. up to 6 weeks. I didn't feel major effects until around week 3. My main issue is getting my tsh back down. That's when I feel the most effects. But, they raise me to 100. Standard is above 30 for scans.
I'm throwing the BS flag on being off meds not impacting you. It was the most miserable 2 weeks I have ever had. Awful. No energy at all. I was freezing cold the entire time. My endo refused to sign paperwork for me to take those week as leave from my job. I'm still amazed i didn't pass out from exhaustion during my commute home. It was July in Alabama. 98 degrees outside and I wore long sleeves, a jacket, and made several trips a day outside of my office to stand in the sun just to try and warm up. I couldn't think straight. Couldn't concentrate. Couldn't focus on anything. Even the simplest tasks were frustrating. Low iodine diet was difficult as almost everything you buy unless you make it yourself has salt in it.
I should have never driven to work and back. 2+ hours in a car per day for 2 weeks. Some studies show it's the equivalent of being impaired by drugs or alcohol due to the decreased reaction time and thinking process.
First thing I did when that was over was fire my endocrinologist and find a better one.
Ask about thyogen. I wasn't offered it so I have no direct input as to how well it works. But being off meds completely was miserable for me.
Everyone is different. I've done 6 weeks twice and 3 weeks once. Let me tell you by the end of the 6 weeks I was a zombie, barely functioning, couldn't think or hardly move and thought I was going to die.
I can imagine 6 weeks of it.
It was hell! That's putting it mildly. I had an allergic reaction to thyrogen so I now have to go off meds every year for scans. I literally lose a couple months of my life each year
Just for a body scan, without RAI, you need to do Lid?
I don’t know. Just told I need a scan. Can we do it with RAI? If so, good news. I’m waiting to hear back from my Endo.
They have to give you some type of RAI as a tracer for the scanner to find.
My TSH has increased over time. Had my second surgery in FEB17 that removed the rest of my thyroid.
Anytime you have a whole body scan you have to deplete your body of iodine. It's what the test picks up on. Like a pet scan runs on glucose
Right, ok I remember that. It’s been a while. The last time I had one, was here in TX, rather than in CT where I had my surgeries, and the dr just threw in there: try to stay away from shellfish and dairy until your scan. I was like huh? No Lid? Only then was he like, oh ya do Lid. Stupid drs
I did thryogen every time so I didn’t have to go off my mess and my endo said lid isn’t necessary anymore that research has shown rai to be just as effective without the diet so I didn’t have to do it but many people do have to do it
Grrrrr lid makes perfect since. For the scan you are given a tracer dose of rai... by depleting your body of iodine thyroid cancer cells are more likely to show up avoiding a false negative. As far as rai goes... starving those cancer cells of iodine will make the rai treatment that much more effective, the rai, poison will go directly to those starved cells killing them off. Please if endo tells you it's not necessary next time do it anyway for at least 7 to 10 days to get the most from your scan and/or treatment.
Their website helps with the diet. They are amazing!