Is anyone lightheaded but never fainted?

126 Answers

spiker.helpful
Answered 5 months ago    reply

Often. Its called presyncope.


mullins
Answered 5 months ago    reply

Me


francene.irritated
Answered 5 months ago    reply

Yup


princemaryjo
Answered 5 months ago    reply

Me

Tomi_wary
Answered 5 months ago    reply

Do you guys have lightheadedness even when laying down? Sorry for the questions. Was diagnosed yesterday

princemaryjo
Answered 5 months ago    reply

tomi I sometimes do, usually I get lightheadedness when I move on either side. No need to be sorry at all


J.Valencia
Answered 5 months ago    reply

My daughter on the daily, 24/7. But she has never passed out!


mysteriousEden
Answered 5 months ago    reply

I get presyncope all the time. But I also faint all the time too


t.baum78
Answered 5 months ago    reply

Yup. The only time I have actually fainted was on my ttt after the nitro.


imclellan
Answered 5 months ago    reply

Yes


Murrell.Nelle98
Answered 5 months ago    reply

Yup. lightheaded every day pretty much but have never fainted. just very close

Tomi_wary
Answered 5 months ago    reply

Me too. It’s awful. How do you cope

Murrell.Nelle98
Answered 5 months ago    reply

I pay attention to the early cues and get down. I sit, lay whatever I need to do. I also chug a big drink as soon as it starts. usually a Gatorade. It does help. But there are some days I’m down all day because of the dizziness and I just ride them out and/or take an extra Midodrine pill


oneida.77
Answered 5 months ago    reply

Me.

oneida.77
Answered 5 months ago    reply

I have fainted before but it’s usually in the shower. I’m usually very lightheaded and dizzy most of the time

Tomi_wary
Answered 5 months ago    reply

Oneida are you able to tell when your about to faint

Tomi_wary
Answered 5 months ago    reply

Oneida is fainting scary? It’s become a fear of mine

Murrell.Nelle98
Answered 5 months ago    reply

Maybe you need to put a stool in your shower and have cooler ones? Shower fainting is very dangerous!

oneida.77
Answered 5 months ago    reply

tomi yes but I usually can’t stop it. It happens so quick I do t feel anything. I just wake up with the shower running and my head buzzing

oneida.77
Answered 5 months ago    reply

nelle I do have a chair and I take cool showers but it still happens.

Murrell.Nelle98
Answered 5 months ago    reply

Oneida prepare ahead of time with a seat then.

Murrell.Nelle98
Answered 5 months ago    reply

Oneida damn! Hope it improves for you!

oneida.77
Answered 5 months ago    reply

nelle thank you it doesn’t happen to often, but it does happen. I try and shower only when someone is around


RainwaterAletha
Answered 5 months ago    reply

Always

Tomi_wary
Answered 5 months ago    reply

Are you lightheaded even when ur bp and hr is normal?

RainwaterAletha
Answered 5 months ago    reply

tomi no. Only from moving from sitting to standing or when I’m down on the ground and have to get up. Stairs too. My heart rate gets super high causing the lighted headedness which is very annoying.

needy.governess85
Answered 5 months ago    reply

I am


itchy.Trista
Answered 5 months ago    reply

All day, every day.


Mak.regretful
Answered 5 months ago    reply

All the time


Vanderpool
Answered 5 months ago    reply

Always


A.Coretta
Answered 5 months ago    reply

Yes. I’ve only gone down once that I know of. But they said that was from a seriously depleted sodium level. I get dizzy all the time. In a flare, I get the grey edges rimming my eyes, like it’s closing in.


feliciagatewood39
Answered 5 months ago    reply

Yes


MLoan67
Answered 5 months ago    reply

Yes, I get where my vision goes black from the outside in and I almost pass out, it happens a lot but I’ve never lost full consciousness. It’s really scary

empathic_bear88
Answered 5 months ago    reply

Blackouts? I get these full boy goes weak and feel sick I have to get to the floor as quick as I can, once it's passed I feel sick for the rest of the day


catharine_botelho76
Answered 5 months ago    reply

Me


jettie.reeve
Answered 5 months ago    reply

Yes!


remona
Answered 5 months ago    reply

Yes


cool_volcano
Answered 5 months ago    reply

Since this started, I have always had pre syncope episodes. I've greyed out, but never lost consciousness. Get really tired and queasy after a grey out.


ambitious_wrestlers70
Answered 5 months ago    reply

Yes!


alemus
Answered 5 months ago    reply

Yes


westfallmarylynn61
Answered 5 months ago    reply

Often. I do both. get lightheaded without fainting and faint.


grounded_dizzy83
Answered 5 months ago    reply

I have never fainted but I frequently black out while standing


ansari_71
Answered 5 months ago    reply

Yes all the time


f.jestine
Answered 5 months ago    reply

Yes. I've never actually fainted because of my dysautonomia. Severe dizziness like a swimming sensation, light headedness, brain fog, fatigue, heart palpitations have been my main symptoms.

Tomi_wary
Answered 5 months ago    reply

How long have you had this?

f.jestine
Answered 5 months ago    reply

15 years, but I now control my dysautonomia very well with natural supplements.

Tomi_wary
Answered 5 months ago

This comment is awaiting moderation

f.jestine
Answered 5 months ago    reply

I don't mind at all!

DEdmundson99
Answered 5 months ago    reply

What supplements do you use?

f.jestine
Answered 5 months ago    reply

Standard Process Hypothalamus PMG has made the biggest impact! I have found other natural supplements, too that have supported my overall health.

DEdmundson99
Answered 5 months ago    reply

That’s good to know! I had to go on a beta blocker because I couldn’t function and I have four kids. I really want to be off it though so I am trying to find ways to replace it.

f.jestine
Answered 5 months ago    reply

Drema I had 4 kids when Dysautonomia hit me. It was so hard to manage. I had so much guilt about what I couldn't do for my family. Looking back, it was hard, but a bonding time for our whole family. We loved each other and we took care of each other. We learned so much about God and our reliance on Him. I wouldn't change a thing. I'm praying for you!

DEdmundson99
Answered 5 months ago    reply

YES! It has been a scary but very good experience for our family. As weird as that sounds. Ha! I’m so thankful my husband is an associate pastor and was able to make his schedule to what our family needed it to be at the time of all this. I will be praying for you as well!


deliciam
Answered 5 months ago    reply

Syncope, presyncope, all of it

Tomi_wary
Answered 5 months ago    reply

When did this first start for you?

deliciam
Answered 5 months ago    reply

It was going on back in my 20s and just gradually got worse


ina_brough44
Answered 5 months ago    reply

Me. I lose vision, for a couple seconds. But I’ve never fainted


Mulveyreliable
Answered 5 months ago    reply

Yes


Georgetta.Thomas
Answered 5 months ago    reply

Yes never fainted but feel so lightheaded and weak and have to sit down or lay down to feel better.


hellen_z
Answered 5 months ago    reply

Every single day I feel hungover I am so lightheaded, but have never fainted.

imclellan
Answered 5 months ago    reply

I have fainted before diagnosis and beta blocker but not since. Now I just have a drunk walk often where I stumble and walk sideways and get a few seconds sometimes when I turn my head or eyes where I feel disoriented a few seconds.

hellen_z
Answered 5 months ago    reply

Yes I do that. it sucks, I am so sorry.

imclellan
Answered 5 months ago    reply

Thanks, I feel sorry for all of us dealing with this.


inspiring.cake72
Answered 5 months ago    reply

Yes, from all my research only 20 to 30% faint. I was diagnosed 4 yrs. ago I have really bad dizzy spells that I thought I was going to faint but I immediately lay down.


KBrister
Answered 5 months ago    reply

Always


claxton_96
Answered 5 months ago    reply

Yes


M.Lean94
Answered 5 months ago    reply

Just got diagnosed always dizzy and only passed out once that lead to a broken foot and then finally lead to a tilt test


Johnna.L
Answered 5 months ago    reply

Yes and a lot of times extremely dizzy!


Jennell.Staab
Answered 5 months ago    reply

Light headed frequently had many near syncope episodes and faint maybe 3 times a year


turbulent.seahorse
Answered 5 months ago    reply

Yes


habitualpolecats87
Answered 5 months ago    reply

Yup


fontes.anxious
Answered 5 months ago    reply

Yes.


Angelique.Bove
Answered 5 months ago    reply

I’ve only ever blacked out from donating blood. If you have POTS don’t be an idiot like Angelique at 21. Both times I donated my friends would say “Angelique you have anemia and low blood pressure perhaps you shouldn’t donate” but 21 year old Angelique persisted until she woke up on the library floor

f.jestine
Answered 5 months ago    reply

God prevented me from donating blood the 3 times I had appointments to! 1. I was underweight. 2. I had had mono recently. 3. My ovarian cyst ruptured and I almost bled to death internally, needed surgery, and a blood transfusion and, surprise! found out I was pregnant with my 3rd child (who is now a beautiful 20 yr old!) I had Lyme back then, and dysautonomia, I'm sure. so thankful God intervened! Live and learn!

Angelique.Bove
Answered 5 months ago    reply

The Red Cross of Greater Portland has called me so many times I have told them: 1. I have POTS my doctor doesn't want me to donate. 2. No thank you 3. No thank you please take me off your call list 4. I have gotten a tattoo while abroad I am not qualified (they told me it wasn't a problem what? ). 5. I can't donate but may I offer my healthy sibling with the same blood type? 6. I'm sorry I am all out of blood. 7. What if I told you I had chronic anemia? 8. You have the wrong number 9. Angelique Vander Stoep is actually deceased- this is her next of kin- please take her off your call list. I don't like lying about my status as being very much alive however declaring my death was my only way to get off the list.


kredman
Answered 5 months ago    reply

Yes


Sommer_Parmenter32
Answered 5 months ago    reply

Every time.


imclellan
Answered 5 months ago    reply

I don't faint since beta blockers but I get a few seconds of disoriented once in a while after turning my head or eyes.

Tomi_wary
Answered 5 months ago    reply

What beta blocker are you on?

imclellan
Answered 5 months ago    reply

Currently I'm on bystlolic. At diagnosis I was put on propanolol, then changed to metoprolol, and now bystlolic.


collen73
Answered 5 months ago    reply

My 21 year old POTSie - lots of near fainting and uses a chair in the shower


cloistered_glabella90
Answered 5 months ago    reply

Sure do. Just sitting her using I pad. Dizzy and lightheaded. Did manage to vacuum and dust. Home health nurse coming to check on hubby. Can't have her think we are slobs.


samathab
Answered 5 months ago    reply

“Why not both?”—my equilibrium


superior.James
Answered 5 months ago    reply

Pretty much all the time


insistent_glabella
Answered 5 months ago    reply

I have fainted bit I feel lightheaded constantly


nero_d
Answered 5 months ago    reply

All the time.


holli_russell
Answered 5 months ago    reply

Yes.


smadaline
Answered 5 months ago    reply

Yes. I thought maybe I didn’t have it because I didn’t.


Herta_Fehr
Answered 5 months ago    reply

Yes almost every day very lightheaded and feel like I’m going to black out but I don’t

Tomi_wary
Answered 5 months ago    reply

Me to! How do you cope

Herta_Fehr
Answered 5 months ago    reply

tomi I just kind of deal with it which sucks because there isn’t much that helps! Sometimes if I add like 3-4 tablespoons of Himalayan salt to a few Oz of water and drink it thought the day it helps a little

Herta_Fehr
Answered 5 months ago    reply

Oh and have you ever heard of alka seltzer gold? I first started taking it for my Lyme treatment but found it helps with some of my pots symptoms also

J_Copper96
Answered 5 months ago    reply

Herta what does the Alka Seltzer help with?

Herta_Fehr
Answered 5 months ago    reply

Janeth it has 1050mgs of sodium so when I’m feeling really bad if I have low bp or feeling really dizzy it helps relieve it a little also it helps with stomach bloat etc

J_Copper96
Answered 5 months ago    reply

Nice, thanks


prudent.firestone
Answered 5 months ago    reply

Yes


Tanya.94
Answered 5 months ago    reply

I haven’t fainted for 2 years but I get lightheaded all the time

Tomi_wary
Answered 5 months ago    reply

Are you on medication for the fainting?

Tanya.94
Answered 5 months ago    reply

No

Tanya.94
Answered 5 months ago    reply

I just know when to sit .

Tomi_wary
Answered 5 months ago    reply

tanya is the fainting from the tachycardia / low bp when standing? Sorry for all these questions. Just diagnosed

Tanya.94
Answered 5 months ago    reply

Not sure tbh . my blood pressure gets high when a stand and low when I lay down. I have hyper pots


Lavonne_Rooks
Answered 5 months ago    reply

Yes!


subsequentParr
Answered 5 months ago    reply

Yes


J_Copper96
Answered 5 months ago    reply

I used to pass out when I was younger but I've since managed bringing myself out of it when it's about to happen or when I started feeling dizzy. I have passed out a couple of times over the past couple of years but not regularly like I was 20 years ago. Still get dizzy here and there but mostly when I'm overheated, dehydrated, hungry, or too active.


E.Berndt
Answered 5 months ago    reply

Yes


Eisele_82
Answered 5 months ago    reply

Yes


Anya_Read
Answered 5 months ago    reply

Yes, every day.


WarwickMerlene
Answered 5 months ago    reply

Yes


ocieruelas
Answered 5 months ago    reply

Our daughter has it happen often. Just diagnosed with POTS.


JenellCanty
Answered 5 months ago    reply

Often


damariss
Answered 5 months ago    reply

I’ve gotten extremely close to fainting but haven’t yet.

Tomi_wary
Answered 5 months ago    reply

Me too. What do you do to help the feeling?

damariss
Answered 5 months ago    reply

I have to sit down, or brace myself on something if I can’t sit, and wait my vision to come back and my head to stop spinning.


sethelene93
Answered 5 months ago    reply

All the time


myrtis_69
Answered 5 months ago

This comment is awaiting moderation


knightmoriah
Answered 5 months ago    reply

Several times a day. everyday


Crawley.Reagan
Answered 5 months ago    reply

Yes, I fight it all day, as long as I move I can fight it off.


L.Dagny
Answered 5 months ago    reply

Happens often to my daughter


Ivy_Veronique6
Answered 5 months ago    reply

Yea


front_poppycock70
Answered 5 months ago    reply

I dont faint often but lightheaded daily. Sometimes I halfway faint if that makes sense lol!

BeckieM
Answered 5 months ago    reply

Yes me to


BeckieM
Answered 5 months ago    reply

Always


LoyceBare
Answered 5 months ago    reply

I haven't fainted in years but still get anxiety attack with light headiness to the point I have to lie on the floor ( I feel I going to fall through) not my bed or couch


G_Alexandra69
Answered 5 months ago    reply

Yes


Dionna.striped
Answered 5 months ago    reply

Yes


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