Is not being able to get warm a pots thing? The last few weeks i've been unbearably freezing, like my teeth are chattering while it's 80 degrees, im wearing 3 layers of clothes, and im under 4 or 5 blankets. I don't know what to do!

34 Answers

Landon_78
Answered 9 months ago    reply

Same here! And I’m in a cold climate

fulfilledrieger
Answered 9 months ago    reply

I live in Florida but I'm from northeast Pennsylvania so it's not like it's cold here


Million.omniscient
Answered 9 months ago    reply

What are your stats? Bp hr and spo2

fulfilledrieger
Answered 9 months ago    reply

My bp is usually around 100/75 and my resting hr is usually about 99-103. I don't know what spo2 means, my doctor who diagnosed me is a total quack and she's not helping me at all

Million.omniscient
Answered 9 months ago    reply

Spo2 oxygen lvl, do u habe a bp cuff or any machine to test?

fulfilledrieger
Answered 9 months ago    reply

No, im just going off of what it is when I go to the doctor and stuff.

fulfilledrieger
Answered 9 months ago    reply

Apparently it's abnormal that my doc didn't do any kind of monitor type tests or anything, my diagnosis kinda just went echo, stress test, tilt table. then she started putting me on meds that continually made me sick and didn't listen when I said it was making me feel awful

Million.omniscient
Answered 9 months ago    reply

Yeah noooooo thats not ok! U need one so I can tell what your body needs

Million.omniscient
Answered 9 months ago    reply

Beta blockers are a hard nooooo. Your bp is to low

Million.omniscient
Answered 9 months ago    reply

When u start to feel your heart race or get dizzy get a cold bottle water and drink it as fast as u can

fulfilledrieger
Answered 9 months ago    reply

I was tried on a beta blocker that I had an allergic reaction to and then florinef which made my bp really high, made me gain 30 lbs in a month, and made me so bloated that I looked like I was stung by bees

fulfilledrieger
Answered 9 months ago    reply

Thank you for your help

Million.omniscient
Answered 9 months ago    reply

Vitamins are a must!
Magnesium/ calcium 2 times a day
Muliti vitamin one a day
Fish oil omega 3 2 times a day

Million.omniscient
Answered 9 months ago    reply

Try to work your legs out as much as possible without passing out
drink 120 oz of electrolyte water daily
These are the basics

Million.omniscient
Answered 9 months ago    reply

When your bp is low u need salt
When your hr is high u need more water and food
Work on your breathing. ml breath from your diaphragm listen to guided meditation music at night to drowned out the buzzing in your ears

Million.omniscient
Answered 9 months ago    reply

I get ground pink Himalayan salt amd put it on empty pill capsules amd take one every 2 hours to keep my bp up

Million.omniscient
Answered 9 months ago    reply

Sorry I kind of unloaded on you lop

Million.omniscient
Answered 9 months ago    reply

Lol

Million.omniscient
Answered 9 months ago    reply

Invest in a wheel chair or knee scooter for long walks

marla85
Answered 9 months ago    reply

Tricia thanks for sharing. Hadn't thought of making my own sodium pills (duh!?!)! Breathing exercises definitely help. this condition can have you breathing very shallow.

Million.omniscient
Answered 9 months ago    reply

Yeah it helps and u control hour much salt u get. Salt messes with some ppls stomach in a horrible way


Agueda_foolhardy
Answered 9 months ago    reply

I don’t know if it’s a POTS thing since I’ve always been like that but I definitely handle the cold even worse since getting sick with it. Best thing I have found is heat packs on my extremeties and chest to try and warm up.


bethany.downs78
Answered 9 months ago    reply

My heating pad gets used all year long!

fulfilledrieger
Answered 9 months ago    reply

Mines not even helping a little bit


D_Estell99
Answered 9 months ago    reply

Heating pad and heating blanket!


Landon_78
Answered 9 months ago    reply

What does everyone do about staying warm when it’s 80° in the summer and you’re out

Million.omniscient
Answered 9 months ago    reply

I use hand warmers. Like the ones u squeeze amd pop and they get hot

Landon_78
Answered 9 months ago    reply

Hot pockets
LOL

LovelyB
Answered 9 months ago    reply

I have taken coconut oil and mixed in a little cayenne pepper. I rub this on my feet, then put on some warm socks. It helps my circulation. For me, poor circulation contributes to being unable to handle both cold and heat.


needfulCarleen
Answered 9 months ago    reply

I don’t know for certain it’s POTs related, but yes I freeze. My thermostat will say it’s in the 70s and it feels like 50s to me. I also have Raynauds so maybe that’s why? Not sure. I just cacoon in a heating blanket.


Chantal_T
Answered 9 months ago    reply

I’m either always too cold or too hot. never anywhere in between haha.


cloistered_glabella90
Answered 9 months ago    reply

It's Winter here. Temp is finally above freezing. Space heater on. Triple blankets on. Still can't get warm. And the sun is shining, snow is melting. Actually feel like I am getting sick. Yuck. All I want is to be warm.


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