Does anyone else have this muscle spasm/tightness issue? Is it sjogren's syndrome or something else? I may never know.
your muscles/ligaments are drying out as well as everything else in your body! Mine is worse in the summer due to dehdration. Overuse is bad as well. Hydrate!!!!!!!!!!!!!! And keep taking whatever is working for you. Muscle relaxers, OTC or natural medicine.
Yea it can be, you can can get dystonia from autoimmune disease
I will try to find the john Hopkins article
I do. It can get really bad.
Magnesium is great for stopping chronic muscle spasms. I have been able to reduce my muscle relaxer intake by taking the magnesium.
Hi. Thanks. What kind of magnesium? Malate, citrate,.....? There are so many kinds.
Maia Magnesium Glycinate. I take it 3 times a day.
Kasandra hi hate to jump in on the convo but what brand do u get and where?
I get spasms in my legs as well
I take low doses of Tizanidine. I take 1 at bedtime. If Im home I take during the day.
Ive never heard of that
So..for me and I know people don't want to hear this but...try and be more active and exercise. I am probably 60 pounds overweight but going to the gym helps tremendously. It takes a little more to recoop but muscles and joints get so much better after the initial struggle. It helps with fatigue as well.
I agree. I started working out in my condo pool. Loved how I felt. Unfortunately about 2 weeks in the scleritis kicked in. Hurts to walk outside in sunlight and I dont want to get chlorine in my eyes.
Farr.i started wearing swimsuit cover ups last year. The shear ones. Then i can still wear tank tops or whatever do sunscreen and can go outside and still be cool. Maybe it would be enough coverage for you and light even when in pool. I always have on glasses and a baseball hat
I take tizanidine nightly. I have to. My neck is so inflamed from damage I sustained from a car accident years ago. If I don't take it I wake up with my muscles like a rock. I need it to be able to turn my neck in my case my accident caused it, but I believe sjogrens contributes to chronic inflammation and doesn't help me become stronger. Crazy fatigue doesn't help
I was taking muscle relaxers and that caused my restless leg to worsen. Not sure why
I have incredibly tight shoulders and neck. One of my best friends from school is a massage therapist and recommended a three-session cranial-sacral massage. I did it, and it was tight again within the week. I've been on muscle relaxants before, but they were habit-forming, so I quit taking them. I have spasms on a regular basis.
I would LOVE massages. I'm 55 and in my day a massage parlor meant something else lol. Need to find someone I trust that isn't outrageous.
I get spasms starting at my neck and they literally roll down my back. Have for years. Just recently diagnosed with sjogren's syndrome but at time of diagnosis, found out that my blood work for sjogren's syndrome was positive as far back as 2010. I go to a university hospital so all records for all patients are kept and all docs there have access. Current doc did all new blood work and told me I was positive for sjogren's syndrome and compared tests from 2010. The doctor in 2010 NEVER told me I had sjogren's syndrome
Yes I do get spasms and have RLS. I don't take anything for it...yet. What and when to take "it" would be helpful.
I am taking lyrica but think it's causing my tummy issues so I'm stopping for a while
I also have Valium for TMJ if I need it
I have spasms, and insanely horrible restless leg syndrome. I take naproxen, cyclobenziprine, magnesium, potassium and iron with no help.
Same. I was given Valium for muscle spasms. Works better for me than muscle relaxers.
My doctor didnt give me that option. But I take more than 20 meds so its hard to find ones that dont interact with each other
I have been taking Tizanidine for quite a few years and just tried to go off of it to reduce the medications I was taking. My pain and tightness came back in my neck especially! I will continue taking them, because neck pain is a migraine trigger for me. This is even with Botox injections for migraines.
The only thing that has helped my fms pain is muscle relaxants. Especially during hormonal times I would sit in a chair for 3 days not being able to move I was in so much pain, the relaxants helped me so much ..I can lead a more normal life and I don't faint from pain anymore
Oh yes muscle spasms in the back and other places too but my back is the worse. I also take Flexeril for that, it helps and I haven't taken any today I didn't even think about it so I'll definitely have to get back on them tomorrow. That way they can stay under control.
Glad you found something that helps too.
I didn't have spasms in my neck and shoulders; the muscles just seemed to be locked all the time. Muscle relaxer at bed time has definitely made life easier. I do get spasms in my feet. The only thing that has helped with that is magnesium
I take Magnesium too but it doesnt seem tohelp with this.
Magnesium nor a chiropractor helped with neck and shoulder pain. Botox neither. The ONLY thing that helped was the muscle relaxer, taken daily at bedtime. That isn't to say that I don't still have pain, because I do, and stiffness. But not like it was without the relaxers
I have spasms so bad in my neck/shoulder so bad, it pulls my head to the side. Muscle relaxers are a must. This has been happening since a neck surgery about 4 yrs ago. I take zanaflex but it isn't working as well anymore. What kind do you take?
I take flexeril. The biggest problem is in my neck/back of head and shoulders also. My legs too but they are not as back as my neck
I take Zanafle
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Cutler what does your doc say about the leg pain and spasms? Are they negated or upon validation do you take anything that works?
I will be going back on August 1 and we will see. She hasn't really responded when i've mentioned it previously, but the past two months have been agonizing and I will definitely push the issue. I started taking sulfasalazine and diclofenac in December and had a great 5 months. Now, Not so much. I think I've been in denial but its time to educate myself. Ice changed my diet, gone back to the gym, sometimes just dragging myself thru the day
Cutler good luck and keep me posted. Tonight as I lay in bed they started to spasm then the most horrid deep ache...it's a painful problem for sure
Yes!! Same here I always feel unable to rela