OK, so in general my sjogren's syndrome symptoms are currently manageable. Except that my tongue is still swollen! It has only been a "little" swollen for the past few months and the drs have unanimously shrugged it off. Last night though it swelled up again- to the painful levels.

Anyone have this happen? Even if I think my symptoms are under control (I don't feel dehydrated- taking eye drops and pilocarpine regularly) is it a pre-cursor to a flare (this is actually what led to my diagnosis)?

6 Answers

Answered 1 year ago    reply

I was on pilocarpine when first diagnosed. I developed a rash- allergy can’t take it or any other drug for sjogren's syndrome

Answered 1 year ago    reply

One classic sign of amyloidosis please get your light chain blood tested!

Answered 1 year ago    reply

I hope you get answers soon!*hugs*

Answered 1 year ago    reply

There’s no set flare symptoms. Each person is different. When I am in a flare my arms are heavy and I feel like I am trying to move thru cement. And total exhaustion even more than usual.

Answered 1 year ago    reply

I describe my flares as being made of lead and walking through treacle!

Answered 1 year ago    reply

Docs all shrugged mine off too.

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