Anyone have this happen? Even if I think my symptoms are under control (I don't feel dehydrated- taking eye drops and pilocarpine regularly) is it a pre-cursor to a flare (this is actually what led to my diagnosis)?
I was on pilocarpine when first diagnosed. I developed a rash- allergy can’t take it or any other drug for sjogren's syndrome
One classic sign of amyloidosis please get your light chain blood tested!
I hope you get answers soon!*hugs*
There’s no set flare symptoms. Each person is different. When I am in a flare my arms are heavy and I feel like I am trying to move thru cement. And total exhaustion even more than usual.
I describe my flares as being made of lead and walking through treacle!
Docs all shrugged mine off too.