Sjogren's Syndrome

Ok. SSDI HEARING is next week.I am super nervous about being interrogated about my invisible illness! It's the worst feeling in the world.

I can't even tell people what's wrong with me let alone attempt to convince someone why I can't work, when it seems I'm just fine, from the outside looking in Anyone been through it that can help me to prepare?

14 Answers

Answered Nov 9, 2017    reply

Go over everything you wrote on your application. Go over all of the records your doctors submitted. If you have a lawyer, make them go over it with you. I had to answer "I don't remember" a lot because I really didn't (I listed memory issues as one of my problems and my lawyer never went over anything with me) and the judge basically made me answer questions I did not know the answer to. Apparently I didn't seem credible so he threw out the mounds of evidence from my doctors and said I was not disabled.

Answered Nov 9, 2017    reply

That's my fear...Im so sorry

Answered Nov 9, 2017    reply

I am terrified! My hearing is next month. I am going to insist my attorney sit down with me one more time and earn his money by going over his strategy and argument for me and coach me again. He's not just going to throw my records at the judge knowing the outcome. Mine needs to be based more on a cognitive and mental perspective and he has got to show me his skills!


Answered Nov 9, 2017    reply

Im in ireland and I go before my work Doctor every 6 months as I am off work a year and a half - had neck operation and then diagnosed with sjogren's syndrome last February. a lot of aches and pains in between the two so a lot of tests going on. I have IBS and inflamed colon and degenerative arthritis as well.I keep a record of all the appointments and tests I had carried out from my last visit ot him and make a note of my ailments. He does not go in to highly medical adetails as he can request them from my Doctor with my consent. I always make sure to mention air conditioning, brght lights and the fatigue and the effects it has on my lifestyle. He even asked me the last time I was in with him did I want the airconditioning turned off . He would ask what I did the day before and when I last socialised. bIack to see him in 6 months.


Answered Nov 9, 2017    reply

Do you have a SSD attorney with experience?

Answered Nov 9, 2017

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Answered Nov 9, 2017    reply

YouTube is an interesting resource to see mock hearings.


Answered Nov 9, 2017    reply

Your attorney should prepare you for what will go on. They will ask how long you can stand, sit, walk, stoop, etc. They will ask you what you did at your previous job. There may be a VE in there and that is the person who will be listening to everything and will determine if you can do any jobs. Don’t use the words “brain fog”. That is the one thing my attorney drilled in my head. If you don’t know the answer, just say you don’t remember. But, like I said your attorney should go over with you what the majority of the questions will be asked. Good luck!!

Answered Nov 9, 2017

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Answered Nov 9, 2017    reply

rebecka Sure, if I feel up to it. I never know how I’m going to feel. I can’t make plans for anything because I can get sick at any time. That’s why I’m not always on here. I try to pop in when I can.

Answered Nov 9, 2017    reply

leanne I hear you, It can be a struggle!. If I do it, then I’ll let you know ahead of time and maybe you can be an alternate.

Answered Nov 9, 2017    reply

rebecka Sounds good


Answered Nov 9, 2017    reply

Take a deep breath, then walk in there and be yourself. They have seen it all, and they will see your honesty. They expect people to be nervous. It'll be ok!!!!


Answered Nov 9, 2017    reply

I just got my SSDI hearing date for February 8th after waiting for 2.5 years. My lawyer’s office says they will help me prep in the 90 minutes immediately before the hearing. What are they thinking? I need to be prepared at least a week before so I can get my thoughts in order.


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