Mastocytosis & Mast Cell Disorders

Question about a sensitive area ahead but not necessarily gender specific... Do any of you get pain really far down in your urethra? After I use the bathroom I have sharp pain for an hour or two really close to the end of the. Tube. Is there an name for this? Is it mast cell related?

9 Answers

Answered Jan 14, 2018    reply

IC maybe?

Answered Jan 14, 2018    reply

I was wondering if it could be. I can get bladder pain too, but not nearly as often.

Answered Jan 14, 2018    reply

I have IC and I have a lot of urethra pain as well, much more frequently than bladder pain. My urologist says it's the IC either way.

Answered Jan 14, 2018    reply

Lissa how did you get diagnosed?

Answered Jan 14, 2018    reply

With IC? My urologist did a bunch of tests to rule everything else out, lots of ultrasounds, scopes, and both MRI and CT. Prepare for the tests to be painful; a lot of the ultrasound/scope ones are "this doesn't hurt" but actually really hurt masties whose urethras are always reacting, which my urologist realized after the first two hurt in weird ways they shouldn't, but if you're going to one who won't give you pain meds you'll be out of commission for 1-3 days if you're as bad as I am (or if you work a job/do an activity you can't do on pain meds you'll be out either way, though I recommend being out on pain meds over being out on pain).

Answered Jan 14, 2018    reply

Does IC include a painful vulva and clitoris? I had a ER visit after days of massive urination and extremely painful downstairs.. All was very red and inflamed.


Answered Jan 14, 2018    reply

https://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/symptoms-causes/syc-20354357


Answered Jan 14, 2018    reply

Only after a bad reaction


Answered Jan 14, 2018    reply

Is there an actual connection between mast cell crap and IC? Like is it suspected that reactive mast cells cause the IC pain? That makes sense to me.


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