Mastocytosis & Mast Cell Disorders

Question for everyone, My Pulmonologist suggesting the flu shot. Has anyone had any problems with it or has it been told not to get it? I had a very bad reaction to the pneumonia shot 15 years ago. Never got any more vaccines after that. Looking for input! Thank you!

45 Answers

Answered Dec 25, 2017    reply

I’m not sure if it’s the same but my child has huge reactions to immunisations no matter what one it is. He flares up like a balloon


Answered Dec 25, 2017    reply

vaccines activate the immune system. This can be a problem for people with MCAS or autoimmune diseases.

Answered Dec 25, 2017    reply

Yes a concern


Answered Dec 25, 2017    reply

I don't trust them. About the time I became horribly ill non stop was around the time of a shot. Load up on immune boosting foods and supplements you want get sick or as bad. I cared for the sickest children in schools with sick staff and kids and did awesome health wise 2 years straight on immune boosting supplements.

Answered Dec 25, 2017    reply

I have never gotten the shot & I am 50. But I was also never this sick. But I also wasn’t dx with MCAS

Answered Dec 25, 2017    reply

Sherry isn't a virus or flu but genetics being switched on and tearing it's ugly head


Answered Dec 25, 2017    reply

My pulmonologist recommends the flu shot to me too. I get it every year. Sometimes I react more than others, but for me, I think I'd rather be safe than get a respiratory virus on top of everything else that I'm fighting. I also had the pneumonia shot about 12-15 years ago and will never do that again.

Answered Dec 25, 2017    reply

Thanks that is good to know. Sounds like you are in similar situation with immunizations.


Answered Dec 25, 2017    reply

I had a really bad reaction to the pneumonia shot. I tolerate the flu shot okay. I have bronchiectasis on top of everything else. I have to get it.

Answered Jan 1, 2018    reply

Sorry to hear that. Pneumonia shot, terrible reaction also.

Answered Jan 1, 2018    reply

Sherry I wonder why. I have heard it a lot.

Answered Jan 1, 2018    reply

Good point! Yes, I would love to know what it is all about. I know it is a vaccine you do not get every year. Not sure if it is every 10 or I have heard 10 years from 1st, as a booster. But then you are all set. It is probably loaded with crappy stuff. Because I also got pneumonia after having the shot 2x's.


Answered Dec 25, 2017    reply

After a lot of thought, I got the preservative free single dose. My Dr split the dose in 1/2, a week apart. She had me pre medicate before each one. One of the deciding factors for me....my plans to be on a plane in the near future. I got really sick the last time I flew a few months ago.

That being said, I was very apprehensive and it was a tough decision. It's really hard to weigh the pros and cons and difficult to figure out which way to go.

Answered Dec 25, 2017    reply

How did you get them to do a preservative free shot?

Answered Dec 25, 2017    reply

It was nice that your doctor would alter the standard protocol for you. Sounds like it was done the least toxic way possible.

Answered Dec 25, 2017    reply

There are several on the market, Basile. The one they gave me was from the pediatrician's office in the same practice. I think it was called Flucelvax single dose. I will check to be sure and get back to you if it was a different one. I also stayed in the office until the Dr was satisfied that I wouldn't have an immediate reaction.

Answered Dec 25, 2017    reply

leticia It was super nice. My pulmonologist (also my primary Dr) and the allergist are part of the same practice. They work together and that has been tremendously helpful.

Answered Dec 25, 2017    reply

leticia I tried to tag you above but it didn't work.

Answered Dec 25, 2017    reply

Basile, I got the Dr to use the preservative free shot just by asking.

Answered Dec 25, 2017    reply

Walgreens has the preservative free single doses as well. I am sure most pharmacies that offer the flu shot carry it. But, call before going. Sometimes they are out. You just have to tell them you are sensitive to the preservatives. They save these for pregnant women and sensitive children but they have given them to me once I explain my situation However, I did stop all vax a few years ago because my reactions were increasing. It is hard to say how you will react.

Answered Dec 25, 2017    reply

Juliet, so sorry to read your reactions were getting worse. It's really frustrating when that happens.

Answered Dec 25, 2017    reply

Hoban I have an up-regulated immune system. The vaccinations were over stimulating my system. But, overall, I am so much better than year since I started Xolair in February 2017, than I have been in over 10 years. However, I am not ready to re-try any vaccinations.

Answered Dec 25, 2017    reply

Juliet, I'm glad you're feeling better. And, I completely understand your reluctance to try vaccines again.

Answered Dec 25, 2017    reply

Juliet, forgot to tag you on the above reply.

Answered Jan 1, 2018    reply

Juliet I am very leary. I also have been in Xolair since May 2017. Dr also said flu shot is about 40% effective. Sorry to be asking a stupid ?, but what is an up regulated
immune system?

Answered Jan 1, 2018    reply

Thanks for that info. Didn’t even know of preservative free shot.

Answered Jan 1, 2018    reply

Sherry my immune system over responds to everything including vaccinations. There is s series of tests immunologists perform to confirm over or under reactive systems. A person with mcad can be either one. But most are over responders.


Answered Dec 25, 2017    reply

We’ve been told no


Answered Dec 25, 2017    reply

I’ve had it every year with no issue and I’ve never gotten the flu .


Answered Dec 25, 2017    reply

I react to vaccines.


Answered Dec 25, 2017    reply

Most vaccines are grown in egg, which is a common reactant/allergen and, at least for me, is one of the things I'm most reactive to. So if you react to egg, stay away. I'm told that pharmacies "should" have egg-free shots but I haven't found one yet.


Answered Dec 25, 2017    reply

I have gotten at the last several years, and I have not had issues.


Answered Dec 25, 2017    reply

Do some research into the link between flu shots and dementia. You might not react to the shot, per se, but long term affects may be alarming.

Answered Jan 1, 2018    reply

Thanks, very interesting. My dad who is extremely healthy, great memory. Works part time, 83yrs old. Never gotten the flu. He had to change Drs and this one talked him into it. I was pissed at first. But he had NO reaction whatsoever. Healthy has a horse...lol


Answered Dec 25, 2017    reply

I believe Dr Theo recommends we do. I have never had a bit of trouble,,,,,


Answered Dec 25, 2017    reply

I'm not saying don't, but I don't get flu shots.

Answered Jan 1, 2018    reply

Yes, I am just asking for opinions, experiences. I have never gotten it. I am afraid to take risk. Thanks!


Answered Dec 25, 2017    reply

I’m in healthcare, so they’re mandatory. Fortunately, I’ve not reacted in the four years I’ve had them.

Answered Jan 1, 2018    reply

That’s really good! Thanks


Answered Jan 1, 2018    reply

Thank you all for your input. It is good to hear everyone’s experiences.
I really thought the majority would be...no stay away! Lol. Being newly dx MCAD, it is hard enough knowing what combo of drugs to take during a flare. Pretty experienced in ER though! Lol

Answered Jan 1, 2018

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Answered Jan 1, 2018

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Answered Jan 1, 2018    reply

I also had a bad reaction to the pneumonia shot, but all my flu shots have been fine.


Answered Jan 1, 2018    reply

I would never risk getting another vaccine. Trust your instincts. The flu shot is neither safe or effective.


Answered Jan 1, 2018    reply

Have you read the ingredients? I'm sure it contains similar things to what was in the pneumonia vaccine that you reacted so badly to. You won't know what in it triggered the reaction. You could have an adverse reaction again, this time more serious. The shot is reportedly 10% effective this year. Is it really worth it? https://www.cdc.gov/vaccines/pubs/pinkbook/downloads/appendices/b/excipient-table-2.pdf


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