Once I'm out of the Xiidra (currently overseas) I'm switching to Restasis.
I’ve used restasis 2x a day for about 10 years. Works and it’s easy
Restasis has been helping me. I've been using it since August. I don't think Xiidra is available here.
I tried Restasis years ago but only for a couple of months. Going to try for 6 months next time. My doctor feels 6 months is a fair time.
I haven’t done either but discussed both extensively with my eye doctor the other day as I’m getting closer and closer to having to do a script (which he and I both want to put off as long as we can due to the costs, even with insurance - no generic med is expensive!). Anyway, he told me out of the 20 or so patients he put on Xidra only 1 is still on it. They all went back to Restasis. So, he recommends that I do Restasis when I feel I’m ready or if I get any major problems that necessitate it. He told me that as an sjogren's syndrome patient, that once I start it there is no quitting it. My eyes will adjust to it in about 6 months and then it will be almost impossible to go back to an OTC drop. So, I have to be ready to be on them and for long-term. Just wanted to share what he told me, especially about the Xidra. Doesn’t sound like it’s worth it to me. Hope you get it figured out!
You can use supplemental drops in between the restasis if eyes need it
Kimberly - Yes, he did say that too. Just that you can’t quit Restasis and go back to OTC only. So, I need to make sure I’m ready for the commitment. They are horribly expensive even with my health insurance.
It lasts longer than one usage. I use the same one for 3 days
Kimberly - He told me that too. I do the same with my OTC drops. It is still a major cost issue for me as I’m single and a teacher. So, it is something I will not do until absolutely necessary. However, I could tell that he expects me to probably go on them this year or next year. I know it from the way my eyes feel. But I’m going to try as long as I can so I can get some other things taken care of with the money I will eventually have to spend on them.
Kisha good luck
Kimberly - Thank you. I understand you were only trying to help. My doctor is very good and understands the expense of putting his patients on them (we even discussed how we don’t understand how Restasis has bypassed the FDA rules for generic meds as they have been on the market well over the timeframe for going generic). Some insurance companies are better at covering the cost on them. I’m on state insurance, and they do not like to cover name brand meds and hit us with covering the costs - mostly to get us to switch, but that can’t be done in this case. That’s why he and I are doing our best to put it off as long as my eyes can take it.
Kisha it's not worth it. Just a bunch of hype the doctors fell for by great pharmaceutical reps (w/no science background). Xiidra also leaves this disgusting mucous like film that comes out of the corner of your eyes for 15 minutes. It's truly gross and I'm definitely going to stock up on the Restasis while I'm on here in Barcelona. The generic is much cheaper here in Spain.
Raul - That’s why I cannot understand why the FDA lets Restasis get away without allowing for generics here in the US. My dad said he had either read or heard something on the news here as to why it hasn’t happened yet, but he couldn’t remember much about it (he is 72 so I don’t expect him to remember stuff like he used to when he was younger). It is horribly frustrating because many of us, not just those with sjogren's syndrome, need this med and it is still expensive depending on your insurance company. At least I know between some personal responses and my eye doctor not to even bother with Xidra.
I LOVE xiidra! It is expensive, but after insurance and a discount card from the company it’s very manageable. The vials are perfect for travel.
More power to you. I find the vials are too easily misplaced in my travel bag. One bottle would've been much more convenient for me on my recent trip to Madrid. Plus I'm always misplacing the stupid things. They just drive me crazy. But that's me.
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I’ve used restasis for 7 years. I keep open vials (with the cap on)in a medicine bottle in my refrigerator. I’m able to get 2 or 3 doses per eye from one vial. I tried xiidra but it burns and blues my vision. Staying with restasis
Wait restasis are vials too??
Lacricerts are the answer for me. No drops to mess with. Like everything else- people love it or hate it though!