What is your go to high salt snack? (PS I hate pickles) Also, how do you track your sodium intake to make sure you are in range?

About me: long story short, I have been to 10 doctors in 6 years, misdiagnosed twice, over 20 medications thrown at me, and finally bubbled down to POTS just 2 weeks ago. I am new to this, I was told I had vertigo and autonomic dysfunction. Now they believe it is POTS. I can't afford testing to confirm the level of it, but would love to have any tips of managing. Issues: dizziness, lightheadedness, nausea, heart palpitations, low BP, HR drop 20+when standing up God bl

64 Answers

Agueda_foolhardy
Answered 9 months ago    reply

Don’t know if this will help but I eat smaller meals more often, always have gravol with me, change positions gradually, I usually eat tostitos for salt intake since they don’t make me more nausous. Avoid huge temperature changes (dress in layers to adjust easily), avoid very hot showers/hot tubs/baths, and constantly try and sip water throughout the day. Also, a full night sleep is a must.

adhesive.pearce
Answered 9 months ago    reply

Thank you so much! Recently I have had issues sleeping, waking up constantly while asleep, any tips?

Agueda_foolhardy
Answered 9 months ago    reply

I have so much trouble sleeping too. I keep my room extra cool and use heavy blankets to help me relax. Every once in a while I use a sleep aid (sleep-eze) although I don’t know if that is bad for POTS but it allows me a decent night sleep. With time you figure out what works best for you for various symptoms by trial and error.

adhesive.pearce
Answered 9 months ago    reply

Thank you!

Paulette_Higginbotham58
Answered 9 months ago    reply

Yea, a lot of us have sleep issues, which only makes us more symptomatic. If you like blankets or quilts that you can feel the weight of, weighted blankets can be great. Sleep meds or herbal sleep aids are pretty common for POTS patients, too. If you are into essential oils, I can tell ya a few things that kinda help with POTS.

adhesive.pearce
Answered 9 months ago    reply

Yes, I regularly use Essential oils, typically lavender, pepermint, and bergamot are my go toos

Paulette_Higginbotham58
Answered 9 months ago    reply

Rosemary helps lower cortisol levels, so if you are adrenal type, it helps. At night, I love lavender, cedar wood, vetiver, and jasmine. I think I do 3 drops, 2 drops 1 drop, 1 drop. I made up an empty bottle so I could just put 2-3 drops overall and get a lighter scent. I plan on testing a spray bottle this summer of witch hazel and a few drops of peppermint and spearmint to spray on my legs and pulse points. It should help avoid overheating.

adhesive.pearce
Answered 9 months ago    reply

Thank you!

v.madaline81
Answered 9 months ago    reply

Taking magnesium and potassium at night help me. As well as reducing screentime and/or using a blue light blocker.


needyleta
Answered 9 months ago    reply

Classic POTS! Potato chips is probably the majority of my salt intake. I eat ham as well and put salt on EVERYTHING. I don’t really know how to keep track of my sodium intake. I used to drink about a gallon of Gatorade a day

adhesive.pearce
Answered 9 months ago    reply

I take midodrine now, and thank you

Murrell.Nelle98
Answered 9 months ago    reply

I’m like you. I LOVE chips! Eat a bit most days


wmittie
Answered 9 months ago    reply

I hate pickles, too. I eat slim jims, funyuns or super salty popcorn occasionally. Usually I just take saltstick pills, though.
They're otc. Amazon & ebay both have great prices on them.

adhesive.pearce
Answered 9 months ago    reply

Thank you!


c.roddy
Answered 9 months ago    reply

My daughter takes salt stick capsules and it helps her all day. You can get them online or at a rei store. But our go to snack was cheez its! Now that she has to be gluten free and dairy free I will be trying to make her snacks.

adhesive.pearce
Answered 9 months ago    reply

Great thank you! I'd love some recipes if you find any successful ones

c.roddy
Answered 9 months ago    reply

Janee sure! We are just starting out on the diet so im still learning! Lol

adhesive.pearce
Answered 9 months ago    reply

As am I!


J_Copper96
Answered 9 months ago    reply

Your hr drops when standing up?

adhesive.pearce
Answered 9 months ago    reply

Yes. Like if my heart rate while I'm sitting at my desk is 85. When I stand up it drops to between 60-70 then slowly goes back up

J_Copper96
Answered 9 months ago    reply

Did they say why they think it's pots?

J_Copper96
Answered 9 months ago    reply

Is your hr ever really high?

adhesive.pearce
Answered 9 months ago    reply

Yes. I had a time where I was just sitting doing nothing and it jumped to 125. It has been on the 90s the best couple days.

adhesive.pearce
Answered 9 months ago    reply

They think I have POTS because of my symptoms

J_Copper96
Answered 9 months ago    reply

Bummer, sorry to hear that

adhesive.pearce
Answered 9 months ago    reply

2014 they said vertigo, 2016 they said autonomic dysfunction, now 2018 they say POTS.
I have tried veggies straws but it make a me nautous

J_Copper96
Answered 9 months ago    reply

Yeah I've been fighting this since 2017. Such a long journey. I can't tolerate the salt tabs because they make me nauseous too. If I'm really symptomatic I'll just pour salt into a little water and slam it. That usually helps right away. I wish you luck and hope you find what works for you

adhesive.pearce
Answered 9 months ago    reply

Thank you, good luck to you as well

v.madaline81
Answered 9 months ago    reply

I feel your frustration. I have some similarities to you. Just so you know, autonomic dysfunction is the umbrella term that POTS falls under. So you probably DO have that, and they’re trying to figure out which kind. I definitely have dysautonomia (autonomic dysfunction), and I don’t fit the POTS criteria exactly (sounds like you don’t either), but it’s the type I fit best. I’ve FINALLY gotten much better control of my symptoms with exercise focusing on adding lean muscle tissue and taking Nuun tablets for salt. I have to take them right before I eat or I have horrific hypovolemia.

cruel.Cordle
Answered 9 months ago    reply

This is confusing to me bc I thought heart rate goes UP when you stand if you have POTS. That said, trying reasonable suggestions to see what helps you is a good idea (everyone with this diagnosis is different & responds to treatment differently). Just don’t assume that what worked for one person will work for you. And never give up searching for something that will work for you. Best of luck!


joanne.michaels
Answered 9 months ago    reply

Do you like olives? They're really high in sodium and a quick snack. Jerky is great too

adhesive.pearce
Answered 9 months ago    reply

No I dont but I do like jerky!


metcalfe_e
Answered 9 months ago    reply

I have autonomic and POTS as well as another neuro disorder. Maybe you have both. We have the actual machine to test available here to be tested. Maybe that would help with your diagnosis. My dr suggested a Gatorade every day

adhesive.pearce
Answered 9 months ago    reply

What does the machine test? If you don't mind me asking

metcalfe_e
Answered 9 months ago    reply

Janee well it’s called a tilt table test. They have all these machines they hook up while they’re doing it. Sorry I said hay confusing lol. Here in KY it’s the only office in the state that has it.

metcalfe_e
Answered 9 months ago    reply

They acted like a lot of dr’s just guess. He showed me stuff on the screen to explain how the test gives a more accurate diagnosis. For she autonomic disorder that is

adhesive.pearce
Answered 9 months ago    reply

No you're fine haha! Nd I had a tilt table test preformed on me a couple years back, it came back clear. I felt terrible but they said nothing alarming. My current doctors in Cleveland wants to run a more dramatic tilt test here they put me on the table but also make surroundings move while measuring my HR, BP, sweat production

metcalfe_e
Answered 9 months ago    reply

Janee that’s interesting. Hopefully it helps. Mine was crazy. He walked in the room and said we’ve got problems . then get on the computer it was like typing stuff for five minutes give me a heart attack I was afraid I had a brain tumor or something lol. Oh he also found that I had a severe B12 Deficiency and put me on shots… My regular doctor never called that because routine blood test don’t check B12. That has definitely helped with my energy levels

adhesive.pearce
Answered 9 months ago    reply

Thank you so much


mysteriousEden
Answered 9 months ago    reply

I take salt tablets and I love sourdough pretzel nuggets. They help calm my stomach when I'm neausous

adhesive.pearce
Answered 9 months ago    reply

Pretzels are my go to for everything, I will have to try the sourdough ones though! Can you get them anywhere?

mysteriousEden
Answered 9 months ago    reply

Ya. Snyder's makes really good ones


T.Merryman68
Answered 9 months ago    reply

Pretzels, chips, popcorn,


N.Jacinda72
Answered 9 months ago    reply

These are really good and POTS friendly! They’re healthy, have salt, and are gluten free. I get them at Publix but I’m sure you can find them elsewhere.

adhesive.pearce
Answered 9 months ago    reply

I will certainly try and find them! Thank you!

N.Jacinda72
Answered 9 months ago    reply

Janee no problem I believe they also come in other flavors


hollimanobsessed
Answered 9 months ago    reply

Salt and vinegar chips

adhesive.pearce
Answered 9 months ago    reply

I love these, just need to get more!


Paulette_Higginbotham58
Answered 9 months ago    reply

Broth, especially bone broth, is probably the best salt intake. I love peeling grapefuit like an orange and salting the slices, same with green apples. Most prepackaged meat is pretty high, especially the snack ones like jerky and slim jims. There are a few different options for powders to add to drinks that may help greatly. The one I have tried is bananabagdrink dot com, they will send a free sample if you request it. It tastes like a multi-vitamin, but helps some of us tremendously. If salty foods aren't palatable, there are multiple options in salt tablets, and they are otc and also on amazon.

adhesive.pearce
Answered 9 months ago    reply

Thank you!


Sha_75
Answered 9 months ago    reply

This depends on what meds you are on because for example flourneph provides her salt all her Dr wants her to do is add salt to her 6 small meals a day and stay away from high salty unhealthy snacks expecaly Roman Noodles she said they were doing more harm than good. I am by no means a judge and jury if eating like that makes you fill better then that is your goal to fill better we were also told not to drink sports drinks and that the iv were short term not long term affective and she has to drink her flouids that was the best way for it to be helpful long term she is on flourneph.1 milagrames 2 x a day


adhesive.pearce
Answered 9 months ago    reply

I am on
Desmopressin Acetate 0.1 MG (1 x a day)
Pyridostigmine BR 60mg a day


Sha_75
Answered 9 months ago    reply

Only thing I can suggest is to talk to you pots specialist about ur salt intake with your meds. Medatrrain diet has done alot of good for my Sarah

adhesive.pearce
Answered 9 months ago    reply

Thank you


griffeythu
Answered 9 months ago    reply

I've been salt loading for the last 15 years and now I have osteoporosis

adhesive.pearce
Answered 9 months ago    reply

What exactly do you mean by salt loading?

griffeythu
Answered 9 months ago    reply

Eatting lots of salt. And then my body said . Too acidic thus more calcium from bones to neutralize.
Also we are not low in salt! Something else is going on!

adhesive.pearce
Answered 9 months ago    reply

So it is good or bad to increase salt? Sorry I am confused

griffeythu
Answered 9 months ago    reply

For me it is not the answer. Never really helped me. Now on bio hormones I retain water. But I know there's gonna be a side effect from this too.

griffeythu
Answered 9 months ago    reply

You have to decide for yourself. I don't agree with salt being the answer.

adhesive.pearce
Answered 9 months ago    reply

I am open to trying different things, have been for 6 years now. I appreciate your input! I hope you get feeling better


L.Yoo
Answered 9 months ago    reply

I stopped doing salt, I need mixed electrolytes so do drinks and rehydration pills


Massa_Dianne
Answered 9 months ago    reply

Drinking a whole Pedialyte within an hr instantly helps me feel better, I also cut up apples and bananas and mix in 2 tblsp of peanut butter, mix it together and sprinkle with salt and that helps me alot too. Those 2 are my go to' s when I'm in a flare


Dixieobsessed
Answered 9 months ago    reply

Gatorade and bags of jerky are ALWAYS around for me!


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