What would you do if your uninformed MD tried to DX you with this crazy DSM crap SOMATOFORM DISORDER. AFTER you were DX with POTS/Dysautonomia?

41 Answers

ambitious_wrestlers70
Answered 8 months ago    reply

Tell them to get stuffed basically


CrowleyM
Answered 8 months ago    reply

Actually it's a pretty serious legal matter. that has to be handled with utmost precision and proper avenues

ambitious_wrestlers70
Answered 8 months ago    reply

Damn. Well then I have no idea!

CrowleyM
Answered 8 months ago    reply

LOL fat lotta help YOU are hahaha

CrowleyM
Answered 8 months ago    reply

I have an idea. just gonna take some work. and not to relapse. lol

ambitious_wrestlers70
Answered 8 months ago    reply

Hahaha sorry

CrowleyM
Answered 8 months ago    reply

Normally I would ignore them but the ramifications on our health especially in an Emergency situation is HUGE and disasterous with that much of a very WRONG and harmful MISDIAGNOSIS.

Seriously. You should google it. Read all about it. Everybody should. It is the New Fibro dumpster bucket, 10 times worse.

I'm ok today, just had my infusion, but just read what this dip is thinking about me but has no guts to say. lol. Has no clue what Ehlers Danlos is. thppt. Hope you are ok too!


CrowleyM
Answered 8 months ago    reply

https://en.wikipedia.org/wiki/Somatic_symptom_disorder


M.Diedrich
Answered 8 months ago    reply

Was it an actual psychiatrist?


CrowleyM
Answered 8 months ago    reply

Neuro!


CrowleyM
Answered 8 months ago    reply

Would any of you like to be placed into a PSYCHIATRIC HOSPITAL for treatment of your POTS as a MENTAL DISORDER? It's REAL.

(From Link above READ CAREFULLY! ) " Consequently, any person suffering from a poorly understood illness can potentially fulfill the criteria for this psychiatric diagnosis, even if they exhibit no psychiatric symptoms in the conventional sense.In 2013-4, there were several widely publicized cases of individuals being involuntarily admitted to psychiatric wards on the basis of this diagnosis alone. This has raised concerns about the consequences of potential misuse of this diagnostic category.

Misdiagnosis

In the opinion of Allen Frances, chair of the DSM-IV task force, the DSM-5's somatic symptom disorder brings with it a risk of mislabeling a sizable proportion of the population as mentally ill. “Millions of people could be mislabeled, with the burden falling disproportionately on women, because they are more likely to be casually dismissed as ‘catastrophizers’ when presenting with physical symptoms.”


CrowleyM
Answered 8 months ago    reply

Poorly understood illness? Can anyone say POTS?


CrowleyM
Answered 8 months ago    reply

So everybody with POTS is just MENTALLY ILL? Hmm. That's the same thing they said about AIDS back in the 80s.


CrowleyM
Answered 8 months ago    reply

He's been my DYSAUTONOMIA SPECIALIST for TWO YEARS. Followed it all along. Admitted he just got over BACTERIAL SEPSIS. I don't think he's right in his ever-flippin mind. It's like he just erased the entire last two years!

M.Diedrich
Answered 8 months ago    reply

Sadly we had a doc that was like that after he had heart surgery, we had to change doctors because he was just nuts after that - so he was quirky before the surgery but afterwards he just wanted to talk about how cool the company was that my husband worked for. Other people we knew hats we him said the same thing. So sorry you’re dealing with this.

CrowleyM
Answered 8 months ago    reply

Wow! Yeah, it was like a complete personality change in him! I need to locate proper channels to address not only this horrific info in my chart, but his fitness to safely and effectively be working with extremely debilitated patients with neurological diseases! I am watching natropaths now. getting away from western medicine and their insanity. the system is insane, certainly not us! X


insistent_glabella
Answered 8 months ago

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Servin
Answered 8 months ago    reply

I’d get a new doc.


CrowleyM
Answered 8 months ago    reply

Patria Yes! you absolutely hit the nail on the head! What makes it all even more insane is he's the one that DX POTS and Dysautonomia. LOL wtf. Now he is pretending like Ehlers Danlos Syndrome is not real, and has nothing to do with it, nor chronic fatigue / myalgic encephalomyletis.. all with over-lapping symptoms, all with no "known cause" they love to use to dismiss it, as well as "no known biologic marker".

Thpttt.

LACK OF EVIDENCE DOES NOT EQUAL EVIDENCE OF LACK! lol


CrowleyM
Answered 8 months ago    reply

Getting a "new doc" when the last one has filled your chart with misdiagnosis is as effective as putting out grease fire with water.

M.Diedrich
Answered 8 months ago    reply

You do have legal right to ask for copy of your medical records and dispute as well as request that any other providers be given copy of data in dispute, etc. Also might contact your state health board and see what else you can do. Other patients might have already complained about similar issues.

CrowleyM
Answered 8 months ago

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CrowleyM
Answered 8 months ago

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j_mortenson
Answered 8 months ago    reply

I would request to speak with him and ask him to explain his diagnosis to you and why. Perhaps he dictated this and it was misinterpreted or accidentally written? You need to have a talk with him first .


ladawnp
Answered 8 months ago

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j.pritchard
Answered 8 months ago    reply

I had a shady service dog 'company" try to tell me something similar. I simply walked away.


hopeless_brick
Answered 8 months ago    reply

Similar case with my son. after 2 years with Pots, we moved to a larger city for better medical resources. drs here say that his stats do not qualify for pots anymore. they say he has conversion disorder and just about refusing to see him any more.


CrowleyM
Answered 8 months ago    reply

That is just "crazy". Not in the fun way. It would be SO much easier if we WERE all nuts! ~ meant in the best way possible, no offense intended to those with actual mental illness. not a joking matter.


A.Cooper98
Answered 8 months ago    reply

I hate doctors that do this to patients. Just because they can’t figure it out means that the fault lays with us.


j_mortenson
Answered 8 months ago    reply

What do you mean tried to diagnosis? Go seek another MD would be the best approach .


insistent.Finney
Answered 8 months ago    reply

My PC did that to me two years ago and had me setting in a bed and was going to put me in a crazy house till I got better I cried and begged my Mom to take me she did thank god. but my Dr still refused to take it out of my chart when I told him I was sick so it followed me and no doctor would take me serious til I finally found one who did two years later. and I had to threaten law suit to get it off my medical record


CrowleyM
Answered 8 months ago    reply

Wow Charlyn that is horrifying! Luckily it was not actually entered as a diagnosis I just happened to see that he mentioned it in my chart notes as a possibility since I wear a neck brace and leg braces for my ehlers-danlos syndrome and something I don't know he listed no reason for believing that and he ignored my others diagnosis and he ignored the fact he's been treating my dysautonomia for 2 years I think he's having his own mental breakdown from his own recent battle with bacterial sepsis and whatever lasting neuro cognitive decline that has caused him to have very similar to myalgic encephalomyelitis which I have now and as soon as I mentioned it that's when he just shut down and said oh I'm not dealing with this

How are you finally able to get it out of your chart?


Sacha_Franck
Answered 7 months ago    reply

I work in the mental health field and had even docs try to go the mental health route with me to at first until I started really laying into them. My biggest advice is to get a new doc who will listen and who is willing to work with you - you won’t change someone who won’t listen. So sorry you had to deal with this - it’s absolutely negligent.


CrowleyM
Answered 7 months ago    reply

There is no "new doc" - I simply can't explain the number I have seen, or how impossible that is. I DID however have a NEW idea - write a letter directly TO the MENTAL health field. Explain the specialists I have seen, their lack of knowledge, what they have said. Get the MEDICAL specialists to look over the letter first, add their replies. Cover it all. Each specialist, each "I have no idea, therefore it MUST BE ALL IN YOUR HEAD". Explain how the Somatic Disorder as outlined in the DSM specifically PRECLUDES anybody with KNOWN MEDICAL CAUSES, of which there are MANY. Explain the BURNOUT of the medical providers, and ask if THEY have had psych evals? Surely the stresses of THEIR jobs MUST be having the SAME effects on THEM, as they claim my life does on ME? I see it everyday, they are overworked, overwhelmed, underpaid, etc. They dismiss and delete our medical illnesses. Ask them, yes, it would be nice to have SUPPORT in dealing with this run around and being treated like a HOT POTATO with all these specialists that run tests that have NOTHING TO DO WITH MY ILLNESS, "just to rule out something serious, you know", then blame it on ME that I have had "MULTIPLE SPECIALISTS WHO CAN'T FIND ANYTHING" Well duh, they all had BLINDERS ON, and ignored the EHLERS DANLOS ZEBRA STANDING RIGHT THERE.

Sheesh. My pulmonogist said the "Autonomic system has NOTHING to do with breathing". LOL wtf? Then he told me to "take an antacid", after having me tested horrific tests for ALS and terrible neuromuscular disease. I am just BAFFLED. That is what I would tell a MENTAL health professional. What the MEDICAL profession has put me through like a puppet on strings, then twisted and manipulated each "failed visit" to their benefit for whatever reasons.

There is more, but my energy is drained with these complications after this bout of bronchitis. I'm sure some would say that's "psychiatric" still today. lol. Craziness I tell ya, but not mine!


front_poppycock70
Answered 7 months ago    reply

The first thing I do is file a formal complaint.


CrowleyM
Answered 7 months ago    reply

junita to whom?

front_poppycock70
Answered 7 months ago    reply

To file a formal conplaint I go to the health department in the jurisdiction of the doctors practice. I bring all my health records or most relevants ones and fill lut their forms of what happened or that o wasnt being treated. Then they talk to me and I explain and then thry fix the issue or they fire someone.

CrowleyM
Answered 7 months ago    reply

Do they ACTUALLY fire people? How do they fix the problem after that? Do they remove it from your records like it never happened?

front_poppycock70
Answered 7 months ago    reply

However you want to have it handled. Yeah they fire people. I dont play around lol! I make it clear that I dont have time to be messed with and that I need a real doctor than can actually do their job correctly.

CrowleyM
Answered 7 months ago

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CrowleyM
Answered 7 months ago

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